User-Centered Development of a Mobile App to Assess the Quality of Life of Patients With Cancer: Iterative Investigation and Usability Testing.

IF 3.3 Q2 ONCOLOGY JMIR Cancer Pub Date : 2023-09-26 DOI:10.2196/44985
Chantal N L Beutter, Katharina Zeller, Uwe M Martens, Bettina Pfleiderer, Christian Fegeler
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Abstract

Background: The treatment for cancer can have a negative impact not only on physical well-being but also on mental health and the quality of life (QoL). Health apps enable the monitoring of different parameters, but to date, there are only few that support patients with cancer and none that focuses on the assessment of QoL. Furthermore, patients as stakeholders are often only integrated at the late stage of the development process, if at all.

Objective: The aim of this research was to develop and evaluate a smartphone app (Lion-App) to enable patients with cancer to autonomously measure the QoL with an iterative, user-centered approach.

Methods: Patients with cancer were involved in a 3-stage process from conceptualization to the point when the app was available on the tester's private device. First, focus groups with members (N=21) of cancer support groups were conducted to understand their expectations and needs. Thereafter, individual tests were performed. After developing a prototype that incorporated findings from the focus groups, a second test cycle was conducted, followed by a beta test lasting 2 months. In our app, the QoL can be assessed via a patient diary and an integrated questionnaire. Through all stages, usability was evaluated using the modular extended version of the User Experience Questionnaire (UEQ+), including the calculation of a key performance indicator (KPI). If possible, the impact of sex on the results was evaluated. As part of the beta test, usage rates as well as age-dependent differences were also assessed.

Results: A total of 21 participants took part in the initial 3 focus groups. In the subsequent usability testing (N=18), 17 (94%) participants rated their impression through the UEQ+, with a mean KPI of 2.12 (SD 0.64, range: -3 to 3). In the second usability test (N=14), the mean KPI increased to 2.28 (SD=0.49). In the beta test, the usage rate of 19 participants was evaluated, of whom 14 (74%) also answered the UEQ+ (mean KPI 1.78, SD 0.84). An influence of age on the number of questionnaire responses in Lion-App was observed, with a decrease in responses with increasing age (P=.02). Sex-dependent analyses were only possible for the first usability test and the beta test. The main adjustments based on user feedback were a restructuring of the diary as well as integration of a shorter questionnaire to assess the QoL.

Conclusions: The iterative, user-centered approach for development and usability testing resulted in positive evaluations of Lion-App. Our app was rated as suitable for everyday use to monitor the QoL of patients with cancer. Initial results indicated that the sex and age of participants seem to play only a minor role.

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以用户为中心开发移动应用程序以评估癌症患者的生活质量:迭代调查和可用性测试。
背景:癌症的治疗不仅会对身体健康产生负面影响,还会对心理健康和生活质量(QoL)产生负面影响。健康应用程序可以监测不同的参数,但到目前为止,支持癌症患者的应用程序很少,也没有一个专注于生活质量评估。此外,作为利益相关者的患者通常只有在开发过程的后期才被整合(如果有的话)。目的:本研究的目的是开发和评估智能手机应用程序(Lion-app),使癌症患者能够通过迭代、以用户为中心的方法自主测量生活质量。方法:癌症患者参与了一个从概念化到应用程序在测试者的私人设备上可用的三阶段过程。首先,对癌症支持小组成员(N=21)进行焦点小组,以了解他们的期望和需求。此后,进行单独的测试。在开发出一个包含焦点小组研究结果的原型后,进行了第二个测试周期,然后进行了为期2个月的测试。在我们的应用程序中,生活质量可以通过患者日记和综合问卷进行评估。在所有阶段,使用用户体验问卷(UEQ+)的模块化扩展版本评估可用性,包括关键性能指标(KPI)的计算。如果可能的话,评估性别对结果的影响。作为测试的一部分,还评估了使用率以及年龄依赖性差异。结果:共有21名参与者参加了最初的3个重点小组。在随后的可用性测试(N=18)中,17名(94%)参与者通过UEQ+对他们的印象进行了评分,平均KPI为2.12(SD 0.64,范围:-3至3)。在第二次可用性测试(N=14)中,平均KPI增加到2.28(SD=0.49)。在贝塔测试中,评估了19名参与者的使用率,其中14人(74%)也回答了UEQ+(平均KPI 1.78,SD0.84)。观察到年龄对Lion App中问卷回复数量的影响,随着年龄的增长,反应减少(P=0.02)。性别依赖性分析仅适用于第一次可用性测试和贝塔测试。基于用户反馈的主要调整是对日记进行重组,并整合了一份较短的问卷来评估生活质量。结论:迭代的、以用户为中心的开发和可用性测试方法对Lion App产生了积极的评价。我们的应用程序被评为适合日常使用,用于监测癌症患者的生活质量。初步结果表明,参与者的性别和年龄似乎只起了很小的作用。
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来源期刊
JMIR Cancer
JMIR Cancer ONCOLOGY-
CiteScore
4.10
自引率
0.00%
发文量
64
审稿时长
12 weeks
期刊最新文献
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