A Comparative Case Study of Hospice and Hospital End-of-Life Care for Aging Adults With Developmental Disabilities.

IF 4.7 Q2 MATERIALS SCIENCE, BIOMATERIALS ACS Applied Bio Materials Pub Date : 2022-05-11 eCollection Date: 2022-01-01 DOI:10.1177/23333936221087626

Jacqueline M McGinley, Christina N Marsack-Topolewski

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Abstract

Greater attention is being paid to issues surrounding end-of-life care for aging adults with developmental disabilities. The purpose of this qualitative study was to explore the end-of-life experiences of two aging adults with developmental disabilities and life-limiting serious illnesses who received care in settings in the United States. Using a comparative case study design, data from three sources (records, staff, surrogates) were collected sequentially and triangulated via within and cross-case analyses. Although the setting and design limit the generalizability of these findings, the feasibility of delivering high quality care to adults with developmental disabilities as they age and experience terminal illnesses is supported. Insights are presented regarding how nurses can address barriers by adapting policies and practices to accommodate the distinct needs that arise as people with developmental disabilities age, become seriously ill, and reach life's end.

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老年发育障碍患者临终关怀与医院临终关怀的比较案例研究

人们越来越关注有发育障碍的老年人的临终关怀问题。这项定性研究的目的是探索两名患有发育障碍和限制生命的严重疾病的老年人在美国接受护理的临终经历。采用比较案例研究设计，依次收集来自三个来源（记录、工作人员、代理人）的数据，并通过内部和跨案例分析进行三角分析。尽管设置和设计限制了这些发现的可推广性，但随着年龄的增长和经历绝症，为发育残疾的成年人提供高质量护理的可行性得到了支持。介绍了护士如何通过调整政策和做法来解决障碍，以适应发展障碍患者随着年龄增长、病情严重和生命终结而产生的独特需求。

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来源期刊

ACS Applied Bio Materials Chemistry-Chemistry (all)

CiteScore

9.40

自引率

2.10%

发文量

464

期刊介绍： ACS Applied Bio Materials is an interdisciplinary journal publishing original research covering all aspects of biomaterials and biointerfaces including and beyond the traditional biosensing, biomedical and therapeutic applications. The journal is devoted to reports of new and original experimental and theoretical research of an applied nature that integrates knowledge in the areas of materials, engineering, physics, bioscience, and chemistry into important bio applications. The journal is specifically interested in work that addresses the relationship between structure and function and assesses the stability and degradation of materials under relevant environmental and biological conditions.