The Care of Childhood Cancer Survivors in India: Challenges and Solutions

M. Prasad, S. Goswami, P. Kurkure
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Abstract

Abstract Purpose  We describe the challenges faced and lessons learnt over three decades of a childhood cancer survivorship program in India. Methods  We provide a descriptive analysis of the challenges and barriers faced in running this program, our strategies in management, and detail the stages of development of holistic support system. Results  The profile of late effects in our cohort of survivors is notable for the high prevalence of psychosocial issues and metabolic syndrome. Major difficulties faced were transitioning of patients to survivorship care and attrition to follow-up, which were overcome to an extent by ensuring constant communication/rapport-building, updated databases, and peer support groups. Collaborations with nonprofit organizations and other donors have enabled financial, psychosocial, educational, and vocational rehabilitation. Conclusions  It is feasible to establish and sustain a survivorship program in a large-volume center in low- and medium-income country. Understanding the unique spectrum of late effects and establishing a holistic support system go a long way in ensuring the long-term physical and mental health and psychosocial concerns of childhood cancer survivors. Decentralization, development of a strong national networks, capacity building, and incorporation of sustainable technology should be priorities in survivorship care.
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印度癌症儿童幸存者的护理:挑战和解决方案
摘要目的 我们描述了三十年来印度癌症儿童生存计划所面临的挑战和吸取的教训。方法 我们对运行该项目所面临的挑战和障碍、我们的管理策略进行了描述性分析,并详细说明了整体支持系统的发展阶段。后果 在我们的幸存者队列中,晚期影响的特征是心理社会问题和代谢综合征的高患病率。面临的主要困难是将患者转移到生存护理和流失到随访,这在一定程度上是通过确保不断的沟通/建立关系、更新数据库和同伴支持小组来克服的。与非营利组织和其他捐助者的合作实现了财务、心理、教育和职业康复。结论 在中低收入国家的大容量中心建立和维持生存计划是可行的。了解晚期影响的独特范围并建立一个全面的支持系统,将大大有助于确保癌症儿童幸存者的长期身心健康和心理社会问题。权力下放、发展强大的国家网络、能力建设和纳入可持续技术应是幸存者护理的优先事项。
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来源期刊
CiteScore
0.40
自引率
0.00%
发文量
91
期刊介绍: The journal will cover technical and clinical studies related to medical and pediatric oncology in human well being including ethical and social issues. Articles with clinical interest and implications will be given preference.
期刊最新文献
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