Development of a survey tool for assessing life traumas and barriers to HIV care in a center of excellence for HIV/AIDS in Appalachian Tennessee

IF 0.4 Q4 SOCIAL WORK Journal of HIV-AIDS & Social Services Pub Date : 2021-10-02 DOI:10.1080/15381501.2021.1999361
Elaine L. Rombach, Melissa White, Emmitt Turner, Morgan K. Jones, H. Mamudu, Lisa Bynum, Roxanne F Underwood, L. Dotson, James L. Adkins, Joy M. Bohannon, Stephanie M. Mathis, Kelly Foster, R. Pack, J. Moorman, Shimin Zheng, M. Quinn
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Abstract

Abstract Introduction A culturally competent survey currently does not exist to characterize the burden of Adverse Childhood Experiences (ACEs) among a HIV/AIDS population receiving care at a local Center of Excellence (COE). Methods A qualitative study was conducted including 11 interviews involving opinions on national surveillance questions to develop a culturally competent survey. Purposive sampling, reactive probing, and analysis of transcribed interviews were completed using structured coding to determine which questions were kept, modified, or removed in the final survey. Results The final 55-question survey contained more generalized ACE questions, topics pertaining to barriers to HIV care, and a list that patients could select from to indicate what they need to improve their HIV care. Conclusion The final survey provided the opportunity to characterize the burden of ACEs at a COE. Future directions involve piloting the survey as a quality improvement tool with the goal of increasing retention rates through more individualized HIV care.
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开发一种调查工具,用于评估田纳西州阿巴拉契亚艾滋病毒/艾滋病卓越中心的生活创伤和艾滋病毒护理障碍
摘要简介目前还没有一项具有文化能力的调查来描述在当地卓越中心(COE)接受护理的艾滋病毒/艾滋病人群中儿童不良经历(ACE)的负担。方法进行一项定性研究,包括11次访谈,涉及对国家监测问题的意见,以制定一项文化能力调查。使用结构化编码完成对转录访谈的目的性抽样、反应性探究和分析,以确定在最终调查中保留、修改或删除了哪些问题。结果最后55个问题的调查包含了更广泛的ACE问题、与HIV护理障碍有关的主题,以及患者可以从中选择的列表,以表明他们需要改进HIV护理。结论最终的调查为描述COE中ACE的负担提供了机会。未来的方向包括将该调查作为一种质量改进工具进行试点,目的是通过更个性化的HIV护理来提高保留率。
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