Māori and Linked Administrative Data: A Critical Review of the Literature and Suggestions to Realise Māori Data Aspirations.

IF 1.6 Q3 HEALTH CARE SCIENCES & SERVICES International Journal of Population Data Science Pub Date : 2022-08-25 DOI:10.23889/ijpds.v7i3.1793
Lara M. Greaves, Cinnamon-Jo Lindsay, Eileen Li, Emerald Muriwai, A. Sporle
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Abstract

Linked data presents different social and ethical issues for different contexts and communities. The Statistics New Zealand Integrated Data Infrastructure (IDI) is a collection of de-identified whole-population administrative datasets that researchers are increasingly using to answer pressing social and policy research questions. Our work seeks to provide an overview of the IDI, associated issues for Māori (the Indigenous peoples of New Zealand), and steps to realise Māori data aspirations. In this paper, we first introduce the IDI including what it is and how it developed. We then move to an overview of Māori Data Sovereignty. Our paper then turns to examples of organisations, agreements, and frameworks which seek to make the IDI and data better for Māori communities. We then discuss the main issues with the IDI for Māori including technical issues, deficit-framed work, involvement from communities, consent, social license, further data linkage, and barriers to access for Māori. We finish with a set of recommendations around how to improve the IDI for Māori, making sure that Māori can get the most out of administrative data for our communities. These include the need to build data researcher capacity and capability for Māori, Māori data co-governance and accountability, reducing practical and skill barriers for access by Māori and Māori organisations, providing robust, consistent and transparent practice exemplars for best practice, and potentially even abolishing the IDI and starting again. These issues are being worked through via Indigenous engagement and co-governance processes that could provide useful exemplars for Indigenous and community engagement with linked data resources.
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Māori和关联的行政数据:对文献的批判性审查和实现Māori数据愿望的建议。
关联数据为不同的背景和社区呈现了不同的社会和道德问题。新西兰统计局综合数据基础设施(IDI)是一个未识别的整体人口管理数据集的集合,研究人员越来越多地使用这些数据集来回答紧迫的社会和政策研究问题。我们的工作旨在概述IDI、毛利人(新西兰土著人民)的相关问题,以及实现毛利人数据愿望的步骤。在本文中,我们首先介绍IDI,包括它是什么以及它是如何发展的。然后,我们将对毛利数据主权进行概述。然后,我们的论文转向了一些组织、协议和框架的例子,这些组织、协议、框架旨在为毛利人社区提供更好的IDI和数据。然后,我们与毛利人IDI讨论了主要问题,包括技术问题、赤字框架工作、社区参与、同意、社会许可、进一步的数据联系以及毛利人获取信息的障碍。最后,我们就如何改善毛利人的IDI提出了一系列建议,确保毛利人能够充分利用我们社区的行政数据。其中包括需要为毛利人、毛利人的数据共同治理和问责制建设数据研究人员的能力,减少毛利人和毛利人组织获取数据的实际和技能障碍,为最佳实践提供强有力、一致和透明的实践范例,甚至有可能废除IDI并重新开始。这些问题正在通过土著参与和共同治理过程来解决,这些过程可以为土著和社区参与相关数据资源提供有用的范例。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
CiteScore
2.50
自引率
0.00%
发文量
386
审稿时长
20 weeks
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