Knowledge of dementia and dementia care in a cross-sectional sample of individuals living in rural and urban areas in KwaZulu-Natal, South Africa

Abstract

Knowledge of dementia is considered one of the facilitators of dementia risk reduction because it has been linked to early detection, diagnosis, and help-seeking in people with dementia. This study explored knowledge of dementia symptoms, causes, and care in a community sample of individuals living in rural and urban areas in KwaZulu-Natal, South Africa. A cross-sectional household study of 300 participants, ⩾ 18 years old, using semi-structured individual interviews was conducted. Of the 300 participants, 94% recognised the presence of the cognitive decline symptoms, and 12.4% identified the symptoms as dementia. Participants emphasised biological and medical risk factors over socio-cultural factors. Although the participants primarily adopted a biomedical understanding of dementia, with a small number acknowledging a traditional understanding, they preferred a multi-disciplinary approach to care. Participants advocated for a multidisciplinary care approach that included medical, family, social work, mental health services, and spiritual and traditional care for people with dementia and their families. Therefore, policy and care services for African people with dementia and their families need to holistically integrate multiple care approaches. This will maximise the benefit of public health interventions while also building capacity in our understaffed and burdened healthcare systems.