Meeting in the middle: experiences of citizenship in community-engaged psychosis research

IF 1.6 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Journal of Public Mental Health Pub Date : 2023-03-07 DOI:10.1108/jpmh-10-2022-0103
R. Higgs, Anne Liao, Tracy Windsor, S. Ben-David
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Abstract

Purpose Previous research has highlighted the importance of engaging people with lived experience (PWLE) in the knowledge creation process. However, diverse approaches to engagement exist. In addition, tensions remain in community-engaged research (CER), including how to address structural inequalities in research settings. This study aims to consider how CER interacts with citizenship within and beyond the research context. Design/methodology/approach This study discusses the authors’ experiences as a majority-PWLE of psychosis research team in Canada, including successes and challenges the authors experienced building their team and navigating research institutions. This study also reflects on the authors’ pathways through citizenship, prior to and during the research process. This study discusses divergent models of CER and their applicability to the cyclical process of citizenship and community participation. Findings Relationships between academic and peer researchers developed organically over time. However, this study was limited by structural barriers such as pay inequality and access to funding. The authors recognize that there are barriers to full citizenship and acknowledge their resources and privilege of being well supported within their communities. Team members built on a foundation of citizenship to access participation in research. This led to opportunities to engage in community spaces, and for PWLE to participate in research as partners and leaders. This study also found that citizenship is a way of giving back, by building a sense of social responsibility. Originality/value Academic and peer researchers can reflect on the authors’ experiences to build more inclusive research teams and communities by using a citizenship approach to research participation.
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中间相遇:社区参与精神病研究中的公民经验
目的先前的研究强调了让有生活经验的人参与知识创造过程的重要性。然而,参与方式多种多样。此外,社区参与研究(CER)仍然存在紧张关系,包括如何解决研究环境中的结构性不平等问题。本研究旨在考虑CER如何在研究背景内外与公民身份相互作用。设计/方法/方法本研究讨论了作者作为加拿大精神病研究团队的大多数PWLE的经历,包括作者在组建团队和指导研究机构方面所经历的成功和挑战。这项研究还反映了作者在研究过程之前和过程中获得公民身份的途径。本研究讨论了CER的不同模型及其对公民身份和社区参与的周期性过程的适用性。发现学术研究人员和同行研究人员之间的关系随着时间的推移而有机发展。然而,这项研究受到薪酬不平等和获得资金等结构性障碍的限制。提交人认识到,获得正式公民身份存在障碍,并承认他们的资源和在社区内得到良好支持的特权。团队成员以公民身份为基础,参与研究。这带来了参与社区空间的机会,也让PWLE作为合作伙伴和领导者参与研究。这项研究还发现,公民身份是一种回馈方式,通过建立社会责任感。原创性/价值学术和同行研究人员可以反思作者的经验,通过使用公民身份方法参与研究,建立更具包容性的研究团队和社区。
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来源期刊
Journal of Public Mental Health
Journal of Public Mental Health PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH-
CiteScore
2.40
自引率
7.10%
发文量
32
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