Rethinking Practices by Rethinking Expertise: A Relational Approach to Family-Centred Inclusive Services

IF 1.7 Q2 REHABILITATION Scandinavian Journal of Disability Research Pub Date : 2021-01-11 DOI:10.16993/SJDR.734
Jóna G. Ingólfsdóttir, R. Traustadóttir, S. Egilson
{"title":"Rethinking Practices by Rethinking Expertise: A Relational Approach to Family-Centred Inclusive Services","authors":"Jóna G. Ingólfsdóttir, R. Traustadóttir, S. Egilson","doi":"10.16993/SJDR.734","DOIUrl":null,"url":null,"abstract":"This article focuses on the views and experiences of professionals providing specialised services to disabled children and their families. It is part of a larger research project that investigates the gap between policy ideals and service provision for young disabled children and their families in Iceland. Contrary to official policies, earlier findings based on the families’ perspectives reported strain and stress from fragmented and inflexible services. The findings presented here are based on three focus-group interviews, conducted with 13 professionals from six disciplines. The aim was to capture their views on their roles, responsibilities, and working conditions. A number of organisational and professional barriers were exposed along with an overall lack of awareness of the basic principles of family-centred services and the human rights relational approach to disability. Recommendations for service development are inspired by Edwards’ relational theory about building inter-professional and inter-organisational links to create high quality practices.","PeriodicalId":46073,"journal":{"name":"Scandinavian Journal of Disability Research","volume":"23 1","pages":"1-13"},"PeriodicalIF":1.7000,"publicationDate":"2021-01-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"5","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Scandinavian Journal of Disability Research","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.16993/SJDR.734","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"REHABILITATION","Score":null,"Total":0}
引用次数: 5

Abstract

This article focuses on the views and experiences of professionals providing specialised services to disabled children and their families. It is part of a larger research project that investigates the gap between policy ideals and service provision for young disabled children and their families in Iceland. Contrary to official policies, earlier findings based on the families’ perspectives reported strain and stress from fragmented and inflexible services. The findings presented here are based on three focus-group interviews, conducted with 13 professionals from six disciplines. The aim was to capture their views on their roles, responsibilities, and working conditions. A number of organisational and professional barriers were exposed along with an overall lack of awareness of the basic principles of family-centred services and the human rights relational approach to disability. Recommendations for service development are inspired by Edwards’ relational theory about building inter-professional and inter-organisational links to create high quality practices.
查看原文
分享 分享
微信好友 朋友圈 QQ好友 复制链接
本刊更多论文
通过重新思考专业知识来重新思考实践:以家庭为中心的包容性服务的关系方法
本文主要介绍为残疾儿童及其家庭提供专门服务的专业人士的意见和经验。这是一个更大的研究项目的一部分,该项目旨在调查冰岛为年幼残疾儿童及其家庭提供的政策理想和服务之间的差距。与官方政策相反,基于家庭观点的早期调查结果报告了支离破碎和不灵活的服务带来的紧张和压力。本文的研究结果基于对来自6个学科的13名专业人士进行的三次焦点小组访谈。目的是了解他们对自己的角色、责任和工作条件的看法。暴露了一些组织和专业障碍,同时对以家庭为中心的服务的基本原则和与人权有关的残疾办法普遍缺乏认识。服务开发建议的灵感来自于爱德华兹关于建立跨专业和跨组织联系以创造高质量实践的关系理论。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
求助全文
约1分钟内获得全文 去求助
来源期刊
CiteScore
3.20
自引率
0.00%
发文量
13
审稿时长
16 weeks
期刊最新文献
A Scoping Review of Research Exploring Working Life Practices of People with Disabilities During the COVID-19 Pandemic Disability, Race, and Origin Intersectionality in the Doctoral Program: Ableism in Higher Education Numerical Investigation on the Performance of Prosthetic Running Blades by Using Different Materials Prevalence of Premenstrual Syndrome and Premenstrual Dysphoric Disorder Among Deaf/Hard-of-Hearing Women with Mood Disorders in Saudi Arabia Layers of Disability Terminology Experiences of People with Disabilities and their Relatives: An Analysis of Dutch Newspapers between 1950–2020
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
现在去查看 取消
×
提示
确定
0
微信
客服QQ
Book学术公众号 扫码关注我们
反馈
×
意见反馈
请填写您的意见或建议
请填写您的手机或邮箱
已复制链接
已复制链接
快去分享给好友吧!
我知道了
×
扫码分享
扫码分享
Book学术官方微信
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术
文献互助 智能选刊 最新文献 互助须知 联系我们:info@booksci.cn
Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。
Copyright © 2023 Book学术 All rights reserved.
ghs 京公网安备 11010802042870号 京ICP备2023020795号-1