Parental experiences with an adolescent female and male with Autism Spectrum Disorder (ASD) in India

IF 1.1 Q4 PSYCHOLOGY, DEVELOPMENTAL Advances in Autism Pub Date : 2019-07-03 DOI:10.1108/AIA-09-2018-0038
N. Bhullar
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Abstract

Purpose The purpose of this paper is to compare experiences of two parents of adolescents with Autism Spectrum Disorder (ASD) differing in gender, including their daily routines at school and at home, challenging behaviour, social support and future plans for their children. Design/methodology/approach The parents of the two adolescents with ASD were interviewed with open-ended questions related to their children as well as their personal experiences, along with getting their individual responses for the established Satisfaction with Life Scale (SWLS). Findings There were similarities and differences in the parents’ experiences with their adolescent children with ASD. Similarities included a limited social support outside their families, hopes for the future of their children, where in they emphasised the need for some “normality” for their child, and a lack of plan in terms of legal guardianship and written wills after their own time. Some of the differences were also noted in the parents’ description of symptoms of their children, with the father of the female adolescent reporting more negative experiences both with his child, as well as with his spouse, a lack of social support and, subsequently, more “dissatisfaction” on the SWLS than the mother of the male adolescent. Research limitations/implications One of the major limitations of this study is the absence of feedback from the other parent besides the one being interviewed, due to which only one parental perspective was provided here. Social implications There are vital social implications of this study. Both parents reported a limited social support due to which they expressed the need for increasing awareness for ASD in the general society. These findings illustrate the need for a focus on designing interventions for improving outcomes for both parent and child in similar situations. Originality/value This study compared the experiences of two parents of adolescents with ASD, differing in gender and symptomology, but similar in other respects, including the family demographic characteristics and cultural context.
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印度一名患有自闭症谱系障碍(ASD)的青少年男女的父母经历
目的比较两名性别不同的自闭症谱系障碍(ASD)青少年父母的经历,包括他们在学校和家里的日常生活、挑战行为、社会支持和对孩子的未来计划。设计/方法/方法对两名自闭症青少年的父母进行了访谈,询问了与他们的孩子以及他们的个人经历有关的开放式问题,并获得了他们对既定生活满意度量表(SWLS)的个人回答。研究结果父母对患有自闭症的青少年子女的经历有相似之处,也有不同之处。相似之处包括家庭之外的有限社会支持,对孩子未来的希望,他们强调孩子需要一些“正常”,以及在法律监护和书面遗嘱方面缺乏计划。在父母对子女症状的描述中也注意到一些差异,与男性青少年的母亲相比,女性青少年的父亲报告了与子女及其配偶的更多负面经历,缺乏社会支持,随后对SWLS的"不满"程度更高。研究局限性/启示本研究的主要局限性之一是除了接受采访的父母之外,没有来自另一方父母的反馈,因此这里只提供了一种父母的观点。社会意义这项研究具有重要的社会意义。父母双方都表示,由于社会支持有限,他们表示需要提高全社会对自闭症谱系障碍的认识。这些发现表明,需要重点设计干预措施,以改善类似情况下父母和孩子的结果。独创性/价值本研究比较了两名自闭症青少年父母的经历,他们在性别和症状上不同,但在其他方面相似,包括家庭人口特征和文化背景。
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来源期刊
Advances in Autism
Advances in Autism PSYCHOLOGY, DEVELOPMENTAL-
CiteScore
2.30
自引率
0.00%
发文量
13
期刊介绍: Advances in Autism is unique in its focus on the health and care aspects and outcomes for people with autism. The journal''s content is international in focus and peer-reviewed. It includes the following: research-based articles evidence-based clinical and support articles articles on policy and advances in services where these can be internationally applied. Key areas of research covered include: clinical developments people''s experience through qualitative research policy debates and outcomes inclusion and quality of life developmental issues population and epidemiological studies services developments evidence-based reviews of key practice issues.
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