The Psychosocial Effects of Having a Sibling with Autism Spectrum Disorder

Q4 Social Sciences Exceptionality Education International Pub Date : 2020-12-16 DOI:10.5206/eei.v30i3.13443
J. Perlman, N. Howe
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引用次数: 1

Abstract

Siblings play an important role in one another’s overall development; thus, the sibling relationship is an important subsystem within the family unit. However, in families where one child has an autism spectrum disorder diagnosis, the dynamics between siblings may be different than in families with typically developing children due to the associated deficits in communication. Therefore, this mixed-method study examined the perceptions of six typically developing children regarding their relationship with a sibling with autism. Parents were heterosexual couples, and families were white and mostly middle class. Semi-structured interviews and questionnaires regarding the sibling relationship were administered to the typically developing child. Identification of major themes followed by focused coding was conducted to capture the essence of what was said and to categorize the most frequent themes. Overall, typically developing children highlighted both positive and negative features of their relationships, for example play, feeling proud, embarrassment, and anger. Additionally, children seemed to be at a loss for coping strategies they considered helpful, perhaps due to their own poor and/or developing emotional regulation skills. The findings emphasize the need to support typically developing children and their personal and social development.
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兄弟姐妹患有自闭症谱系障碍的社会心理影响
兄弟姐妹在彼此的全面发展中发挥着重要作用;因此,兄弟姐妹关系是家庭单元中的一个重要子系统。然而,在一个孩子被诊断为自闭症谱系障碍的家庭中,由于相关的沟通缺陷,兄弟姐妹之间的动态可能与有典型发育中孩子的家庭不同。因此,这项混合方法研究调查了六名典型发育中的儿童对他们与自闭症兄弟姐妹关系的看法。父母都是异性恋夫妇,家庭都是白人,大多是中产阶级。对典型发育中的孩子进行了关于兄弟姐妹关系的半结构化访谈和问卷调查。对主要主题进行识别,然后进行重点编码,以捕捉所说内容的本质,并对最常见的主题进行分类。总的来说,典型的发展中的孩子突出了他们关系的积极和消极特征,例如玩耍、感到骄傲、尴尬和愤怒。此外,孩子们似乎对他们认为有帮助的应对策略不知所措,可能是因为他们自己的情绪调节能力较差和/或正在发展。研究结果强调了支持典型发育中儿童及其个人和社会发展的必要性。
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来源期刊
Exceptionality Education International
Exceptionality Education International Social Sciences-Education
CiteScore
1.10
自引率
0.00%
发文量
5
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