Ethical Considerations When Conducting Pan-European Research with and for Adolescent Young Carers

IF 0.7 Q4 SOCIAL WORK Ethics and Social Welfare Pub Date : 2023-04-03 DOI:10.1080/17496535.2023.2205654
E. Hanson, F. Lewis, F. Barbabella, R. Hoefman, G. Casu, L. Boccaletti, A. Leu, V. Hlebec, Irena Bolko, S. Santini, M. Svensson, S. Becker, L. Magnusson
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Abstract

ABSTRACT Adolescent young carers (AYCs) are a sub-group of young carers who carry out significant or substantial caring tasks and assume a level of responsibility which would usually be associated with an adult. They are a potentially vulnerable group of minors because of the risk factors associated with their caring role. AYCs face a critical transition phase from adolescence to adulthood often with a lack of tailored support from service providers. The recently completed European funded ‘ME-WE’ project, which forms the focus of this paper, aimed to change the ‘status quo’ by advancing the situation of AYCs in Europe, via responsive research and knowledge translation actions. This paper outlines the participatory, co-creation approach employed in the project to optimise AYC’s involvement. It describes the ethical framework adopted by the project consortium to ensure the wellbeing of AYCs within all project activities. Ethical issues that arose in the field study work in all six countries are presented, followed by a discussion of the level of success or otherwise of the consortium to address these issues. The paper concludes with lessons learned regarding ethically responsible research with and for AYCs that are likely transferable to other vulnerable research groups and pan-European projects.
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对青少年护理人员进行泛欧研究时的伦理考虑
摘要青少年护理人员(AYCs)是一组年轻护理人员,他们执行重要或实质性的护理任务,并承担通常与成年人相关的责任。由于与照顾角色相关的风险因素,他们是潜在的弱势未成年人群体。AYC面临着从青少年到成年的关键过渡阶段,通常缺乏服务提供商的量身定制的支持。最近完成的由欧洲资助的“ME-WE”项目是本文的重点,旨在通过响应性研究和知识翻译行动,改善欧洲AYC的状况,从而改变“现状”。本文概述了项目中采用的参与式、共同创造的方法,以优化AYC的参与。它描述了项目联合体为确保AYC在所有项目活动中的健康而采用的道德框架。介绍了在所有六个国家的实地研究工作中出现的伦理问题,然后讨论了解决这些问题的财团的成功程度或其他方面。论文最后总结了与AYC进行道德责任研究的经验教训,这些经验教训可能会转移到其他弱势研究群体和泛欧项目中。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
CiteScore
1.60
自引率
20.00%
发文量
36
期刊介绍: Ethics and Social Welfare publishes articles of a critical and reflective nature concerned with the ethical issues surrounding social welfare practice and policy. It has a particular focus on social work (including practice with individuals, families and small groups), social care, youth and community work and related professions. The aim of the journal is to encourage dialogue and debate across social, intercultural and international boundaries on the serious ethical issues relating to professional interventions into social life. Through this we hope to contribute towards deepening understandings and further ethical practice in the field of social welfare. The journal welcomes material in a variety of formats, including high quality peer-reviewed academic papers, reflections, debates and commentaries on policy and practice, book reviews and review articles. We actively encourage a diverse range of contributions from academic and field practitioners, voluntary workers, service users, carers and people bringing the perspectives of oppressed groups. Contributions might include reports on research studies on the influence of values and ethics in social welfare practice, education and organisational structures, theoretical papers discussing the evolution of social welfare values and ethics, linked to contemporary philosophical, social and ethical thought, accounts of ethical issues, problems and dilemmas in practice, and reflections on the ethics and values of policy and organisational development. The journal aims for the highest standards in its published material. All material submitted to the journal is subject to a process of assessment and evaluation through the Editors and through peer review.
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