E. Hanson, F. Lewis, F. Barbabella, R. Hoefman, G. Casu, L. Boccaletti, A. Leu, V. Hlebec, Irena Bolko, S. Santini, M. Svensson, S. Becker, L. Magnusson
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引用次数: 0
Abstract
ABSTRACT Adolescent young carers (AYCs) are a sub-group of young carers who carry out significant or substantial caring tasks and assume a level of responsibility which would usually be associated with an adult. They are a potentially vulnerable group of minors because of the risk factors associated with their caring role. AYCs face a critical transition phase from adolescence to adulthood often with a lack of tailored support from service providers. The recently completed European funded ‘ME-WE’ project, which forms the focus of this paper, aimed to change the ‘status quo’ by advancing the situation of AYCs in Europe, via responsive research and knowledge translation actions. This paper outlines the participatory, co-creation approach employed in the project to optimise AYC’s involvement. It describes the ethical framework adopted by the project consortium to ensure the wellbeing of AYCs within all project activities. Ethical issues that arose in the field study work in all six countries are presented, followed by a discussion of the level of success or otherwise of the consortium to address these issues. The paper concludes with lessons learned regarding ethically responsible research with and for AYCs that are likely transferable to other vulnerable research groups and pan-European projects.
期刊介绍:
Ethics and Social Welfare publishes articles of a critical and reflective nature concerned with the ethical issues surrounding social welfare practice and policy. It has a particular focus on social work (including practice with individuals, families and small groups), social care, youth and community work and related professions. The aim of the journal is to encourage dialogue and debate across social, intercultural and international boundaries on the serious ethical issues relating to professional interventions into social life. Through this we hope to contribute towards deepening understandings and further ethical practice in the field of social welfare. The journal welcomes material in a variety of formats, including high quality peer-reviewed academic papers, reflections, debates and commentaries on policy and practice, book reviews and review articles. We actively encourage a diverse range of contributions from academic and field practitioners, voluntary workers, service users, carers and people bringing the perspectives of oppressed groups. Contributions might include reports on research studies on the influence of values and ethics in social welfare practice, education and organisational structures, theoretical papers discussing the evolution of social welfare values and ethics, linked to contemporary philosophical, social and ethical thought, accounts of ethical issues, problems and dilemmas in practice, and reflections on the ethics and values of policy and organisational development. The journal aims for the highest standards in its published material. All material submitted to the journal is subject to a process of assessment and evaluation through the Editors and through peer review.