Review of the Medical Home Portal Website: Connecting Parents and Clinicians with High Quality Information about Children and Youth with Special Health Care Needs
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Abstract
Abstract Nearly one fifth of children in the United States have special healthcare needs, but their pediatricians may only deal with 1–3 patients who fall into the category of rare or chronic disease. Where can they find information on treating these conditions when they do not confront them very often? And where can the families of these children find quality information to help care for them? One website that covers both of these situations is the Medical Home Portal. This review will describe the Medical Home Portal website, and discuss the purpose of the site, the site's strengths and weaknesses, and who should use this resource.
期刊介绍：
The Journal of Consumer Health on the Internet is the only professional peer-reviewed journal devoted to locating consumer health information via the Internet. In this journal librarians and health information providers describe programs and services aimed at helping patients and the general public find the health information they need. From the Editor: "Studies have shown that health information is one of the major reasons that people worldwide access the Internet. As the amount of health information on the Web increases exponentially, it becomes critical that librarians-including public and medical librarians-be knowledgeable about what is available online and be able to direct users to reliable, accurate, quality information."
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