{"title":"Genome Editing and Relational Autonomy","authors":"Aline Kalbian","doi":"10.1111/jore.12405","DOIUrl":null,"url":null,"abstract":"<div>\n \n <p>Developed in the past two decades, the clustered regularly interspaced short palindromic repeats-associated protein 9 (CRISPR-Cas9) technique offers greater accessibility and efficiency in editing genes. Its immediate success has transformed medical research and treatment in productive ways, but has also left questions about ethical consequences in its wake. These are questions familiar to bioethical inquiry. How do we balance short-term and long-term benefits and risks? How do we promote just and equitable access to new medical interventions? How do we protect respect for individual autonomy? These questions require a balance between protecting individuals' liberties and the good of the communities in which they live. In this essay, I am interested in how the principle of respect for autonomy can be interpreted in light of CRISPR-Cas9. I argue that a relational autonomy framework forges a middle ground between the need to respect individual freedom to pursue genetic treatments and the need to acknowledge the networks of dependence that define our moral worlds. I identify three thematic areas that relational autonomy brings into greater focus: the importance of trust, the acknowledgment of vulnerability/dependence, and the promotion of justice. Autonomy understood relationally allows us to see individual freedom as tethered to communal well-being.</p>\n </div>","PeriodicalId":45722,"journal":{"name":"JOURNAL OF RELIGIOUS ETHICS","volume":null,"pages":null},"PeriodicalIF":0.5000,"publicationDate":"2022-11-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"JOURNAL OF RELIGIOUS ETHICS","FirstCategoryId":"1085","ListUrlMain":"https://onlinelibrary.wiley.com/doi/10.1111/jore.12405","RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"0","JCRName":"RELIGION","Score":null,"Total":0}
引用次数: 0
Abstract
Developed in the past two decades, the clustered regularly interspaced short palindromic repeats-associated protein 9 (CRISPR-Cas9) technique offers greater accessibility and efficiency in editing genes. Its immediate success has transformed medical research and treatment in productive ways, but has also left questions about ethical consequences in its wake. These are questions familiar to bioethical inquiry. How do we balance short-term and long-term benefits and risks? How do we promote just and equitable access to new medical interventions? How do we protect respect for individual autonomy? These questions require a balance between protecting individuals' liberties and the good of the communities in which they live. In this essay, I am interested in how the principle of respect for autonomy can be interpreted in light of CRISPR-Cas9. I argue that a relational autonomy framework forges a middle ground between the need to respect individual freedom to pursue genetic treatments and the need to acknowledge the networks of dependence that define our moral worlds. I identify three thematic areas that relational autonomy brings into greater focus: the importance of trust, the acknowledgment of vulnerability/dependence, and the promotion of justice. Autonomy understood relationally allows us to see individual freedom as tethered to communal well-being.
期刊介绍:
Founded in 1973, the Journal of Religious Ethics is committed to publishing the very best scholarship in religious ethics, to fostering new work in neglected areas, and to stimulating exchange on significant issues. Emphasizing comparative religious ethics, foundational conceptual and methodological issues in religious ethics, and historical studies of influential figures and texts, each issue contains independent essays, commissioned articles, and a book review essay, as well as a Letters, Notes, and Comments section. Published primarily for scholars working in ethics, religious studies, history of religions, and theology, the journal is also of interest to scholars working in related fields such as philosophy, history, social and political theory, and literary studies.