{"title":"The lived experience and occupational impact of individuals with Dupuytren's disease: a scoping review","authors":"R. Cox, A. McCann, Stacey M. Cross, M. Molineux","doi":"10.12968/ijtr.2021.0122","DOIUrl":null,"url":null,"abstract":"Understanding an individual's experience of living with Dupuytren's disease is important to support rehabilitation. The aim of this review was to explore the extent to which the literature provides an understanding of the lived experience of individuals with Dupuytren's disease, including the occupational impact. A scoping review was completed. Three electronic databases were searched, using the terms Dupuytren* and experience. The search yielded 257 articles, and 60 were included in the final review. Most articles (43; 79.62%) made non-specific statements regarding occupational impacts. All articles (100%) included physical factors; 13 (24.07%) affective; five (9.45%) cognitive; and none discussed spirituality. Thematic analysis yielded an overarching theme of the prioritisation of professionals' perspectives. Sub-themes highlighted that most literature focused on a narrow biomedical aspects of the disease and included: a physical or reductionist approach to viewing the condition; glimpses of life with Dupuytren's disease; and a limited focus on the journey. Consultation with occupational therapists confirmed these themes and added discussion points. There is a need for research regarding patient perspectives, including psychosocial factors, so that these are elucidated and prioritised. Further research should also explore how the impact of the condition changes over time, and how individuals cope and adapt.","PeriodicalId":46562,"journal":{"name":"International Journal of Therapy and Rehabilitation","volume":" ","pages":""},"PeriodicalIF":0.5000,"publicationDate":"2022-11-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"International Journal of Therapy and Rehabilitation","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.12968/ijtr.2021.0122","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q4","JCRName":"REHABILITATION","Score":null,"Total":0}
引用次数: 0
Abstract
Understanding an individual's experience of living with Dupuytren's disease is important to support rehabilitation. The aim of this review was to explore the extent to which the literature provides an understanding of the lived experience of individuals with Dupuytren's disease, including the occupational impact. A scoping review was completed. Three electronic databases were searched, using the terms Dupuytren* and experience. The search yielded 257 articles, and 60 were included in the final review. Most articles (43; 79.62%) made non-specific statements regarding occupational impacts. All articles (100%) included physical factors; 13 (24.07%) affective; five (9.45%) cognitive; and none discussed spirituality. Thematic analysis yielded an overarching theme of the prioritisation of professionals' perspectives. Sub-themes highlighted that most literature focused on a narrow biomedical aspects of the disease and included: a physical or reductionist approach to viewing the condition; glimpses of life with Dupuytren's disease; and a limited focus on the journey. Consultation with occupational therapists confirmed these themes and added discussion points. There is a need for research regarding patient perspectives, including psychosocial factors, so that these are elucidated and prioritised. Further research should also explore how the impact of the condition changes over time, and how individuals cope and adapt.
期刊介绍：
International Journal of Therapy and Rehabilitation (IJTR) publishes original research, providing a platform for the latest key research findings in therapy and rehabilitation. Review and analysis articles are invited internationally to enable the sharing of practices and developments worldwide, and to raise awareness of different cultural influences in health care. IJTR provides an interdisciplinary approach to therapy and rehabilitation by: -Providing a well-referenced source of information to all professionals involved in therapy and rehabilitation worldwide, including occupational therapists, physiotherapists, chiropodists and podiatrists, radiographers, speech and language therapists and orthoptists -Providing a peer-reviewed source of original research and information presented in an accessible, informative and professional medium -Providing a forum for the discussion of new ideas, information and issues relating to therapy and rehabilitation -Creating an awareness of the national and international issues affecting professionals involved in therapy and rehabilitation -Encouraging collaboration and sharing of new ideas between professions worldwide
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