Informed choice in a multicultural world

IF 0.6 Q4 HEMATOLOGY Thalassemia Reports Pub Date : 2018-04-19 DOI:10.4081/THAL.2018.7475
M. Petrou
{"title":"Informed choice in a multicultural world","authors":"M. Petrou","doi":"10.4081/THAL.2018.7475","DOIUrl":null,"url":null,"abstract":"Knowledge and autonomy are key aspects of informed choice; it is important to define what is important for participants to understand, when accepting or declining screening and for individuals to understand that screening is optional and their own personal choice There are no agreed thresholds or minimum standards for the knowledge an individual is required to have to make an ‘informed’ choice. It is time that minimum agreed standards are developed for practitioners who provide genetic information. There is no standard for evaluating good knowledge or informed choice in population reproductive genetic screening, however measuring people’s choices is a good indicator of informed choice. Informed choice in a multicultural world will be explored and an overview of the different levels of informed choice, practiced in the pathway from genetic screening to identifying at risk couples discussed.","PeriodicalId":22261,"journal":{"name":"Thalassemia Reports","volume":" ","pages":""},"PeriodicalIF":0.6000,"publicationDate":"2018-04-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.4081/THAL.2018.7475","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Thalassemia Reports","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.4081/THAL.2018.7475","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q4","JCRName":"HEMATOLOGY","Score":null,"Total":0}
引用次数: 0

Abstract

Knowledge and autonomy are key aspects of informed choice; it is important to define what is important for participants to understand, when accepting or declining screening and for individuals to understand that screening is optional and their own personal choice There are no agreed thresholds or minimum standards for the knowledge an individual is required to have to make an ‘informed’ choice. It is time that minimum agreed standards are developed for practitioners who provide genetic information. There is no standard for evaluating good knowledge or informed choice in population reproductive genetic screening, however measuring people’s choices is a good indicator of informed choice. Informed choice in a multicultural world will be explored and an overview of the different levels of informed choice, practiced in the pathway from genetic screening to identifying at risk couples discussed.
查看原文
分享 分享
微信好友 朋友圈 QQ好友 复制链接
本刊更多论文
多元文化世界中的知情选择
知识和自主性是知情选择的关键方面;重要的是,当参与者接受或拒绝筛查时,要定义什么是重要的,让个人理解筛查是可选的,以及他们自己的选择。对于个人必须做出“知情”选择的知识,没有商定的阈值或最低标准。现在是为提供基因信息的从业者制定最低商定标准的时候了。在人群生殖基因筛查中,没有评估良好知识或知情选择的标准,但衡量人们的选择是知情选择的一个很好的指标。将探讨多元文化世界中的知情选择,并概述从基因筛查到识别高危夫妇的不同水平的知情选择。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
求助全文
约1分钟内获得全文 去求助
来源期刊
Thalassemia Reports
Thalassemia Reports HEMATOLOGY-
自引率
0.00%
发文量
17
审稿时长
10 weeks
期刊最新文献
β Thalassemia Mutation Flow in Indonesia: A Migration Perspective Amlodipine Therapy in β-Thalassemia Patients: A Systematic Review and Meta-Analysis on Ferritin Levels and Liver MRI T2* Association of Bone Disorder and Gene Polymorphism of PPAR-γ Pro12 Ala in Egyptian Children with β-Thalassemia Infection and Potential Challenge of Childhood Mortality in Sickle Cell Disease: A Comprehensive Review of the Literature from a Global Perspective Association between Glomerular Filtration Rate and β-Thalassemia Major: A Systematic Review and Meta-Analysis
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
现在去查看 取消
×
提示
确定
0
微信
客服QQ
Book学术公众号 扫码关注我们
反馈
×
意见反馈
请填写您的意见或建议
请填写您的手机或邮箱
已复制链接
已复制链接
快去分享给好友吧!
我知道了
×
扫码分享
扫码分享
Book学术官方微信
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术
文献互助 智能选刊 最新文献 互助须知 联系我们:info@booksci.cn
Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。
Copyright © 2023 Book学术 All rights reserved.
ghs 京公网安备 11010802042870号 京ICP备2023020795号-1