Narratives of Patients with Osteoarthritis from Yucatan: A Focus Group Interview Study

Damaris Estrella-Castillo, H. Rubio-Zapata, J. Alvarez-Nemegyei, L. Gómez-de-Regil
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Abstract

Introduction: Narrative Medicine serves to accompanying the patient through the experience of illness, listening to his/her story in a simplified therapeutic role. The aim of this interview-based study was to explore in a group of patients with OA from Yucatan the content of their narratives regarding their illness. Methods: Eight patients with OA participated in five focus group interviews that were tape recorded and transcribed verbatim. Narrative analysis considered the number of mentions and theoretical saturation with three dimensions: pain, stiffness and functional capacity.Results: Pain was associated with quality of life, religiosity and social interactions. Regarding stiffness and functional capacity, participants expressed the appraisal of illness as an inevitable deterioration and a rather passive coping response.Conclusions: Narrative-based evidence on how patients with OA perceive and manage their illness underscore health as a concept where the physical and psychological dimensions are in an ongoing interaction; thus, calling for more sensitivity from the medical community and for a comprehensive interdisciplinary treatment.
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尤卡坦半岛骨关节炎患者的叙述:一项焦点小组访谈研究
导读:叙事医学以一种简化的治疗角色陪伴病人经历疾病,倾听他/她的故事。本研究以访谈为基础,目的是探讨一组尤卡坦半岛OA患者对其疾病的叙述内容。方法:对8例OA患者进行5次焦点小组访谈,录音并逐字抄录。叙事分析从疼痛、僵硬和功能容量三个维度考虑提及次数和理论饱和。结果:疼痛与生活质量、宗教信仰和社会交往有关。关于僵硬和功能能力,参与者表示疾病的评价是不可避免的恶化和相当被动的应对反应。结论:基于叙述的证据表明OA患者如何感知和管理他们的疾病,强调健康是一个生理和心理维度处于持续相互作用的概念;因此,呼吁医学界更加敏感,并进行全面的跨学科治疗。
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审稿时长
4 weeks
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