Continuity of Care for the Child With Spina Bifida

Abstract

Spina bifida (SB), the second most common congenital birth defect in North America, is characterized by inadequate closure of spinal canal (Lindsay, 2014). SB leads to permanent and irreversible damage to the nervous system and spinal cord. Children diagnosedwith SB can develop a variety of conditions including bowel and bladder dysfunction, conditions that impact skin integrity, neurological and learning complications, respiratory track problems, and functional limitations (Lindsay, 2014). It is important for school administrators, school nurses, teachers, and the multidisciplinary medical team to have knowledge regarding SB and subsequent limitations of SB to ensure that all children receive the proper care and education (KennedyKrieger Institute, 2009). Adaptations and modifications to the learning environment will be individualized based on the child's needs. The purpose of this article is to present holistic care at the elementary, middle, and high school phases for children with SB. This article will review the importance of the multidisciplinary process to foster autonomy and independence of the child with SB so they can thrive in the school system and community.