Planning the Evaluation of Patient Engagement in the PriCare Research Program

Abstract

The involvement of patients, their families, or their representatives is becomingincreasingly common in health-care research. However, theoretical justif cationof patient engagement (PE) and consistent guidance on how to include patients askey stakeholders on research teams are still lacking. Tis paper describes how the Pri-Care group integrates PE into its program’s governance structure and uses a programlogic perspective to engage patients in the planning phases of a research study basedon resources, processes, and relationships, guided by the SPOR-CIHR’s PE framework.Te PriCare approach facilitates the evaluation and continuous improvement of PE.