Development of a Core Set of Self-Management Support Needs of Esophageal Cancer Patients: Results from a Delphi Study among Healthcare Professionals

IF 1.8 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES European Journal of Cancer Care Pub Date : 2023-03-14 DOI:10.1155/2023/3164450
D. Adriaans, F. Heesakkers, J. Teijink, A. D. Dierick-van Daele, J. Haveman, M. Sosef, J. W. van den Berg, M. van Det, H. Hartgrink, W. Jansen, C. Rosman, S. Lagarde, S. van Esser, E. van der Harst, H. V. van Laarhoven, G. Nieuwenhuijzen
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Abstract

Objective. We aimed to gain consensus on HCPs’ perspectives on self-management support information needs of patients with esophageal cancer during the preoperative phase. Methods. Based on the literature, observations of clinical consultations, and hospital patient information leaflets, a survey was created. HCPs were surveyed twice about their opinion on importance of information, from “not essential” to “absolutely essential,” using Delphi methods. Topics were included in the second round if predetermined criteria were met. To be included in the final list, topics had to meet criteria for consensus and stability. Results. 64 information items and 6 sources of support were identified. Survey response rates were 59% (68 out of 116, first round) and 75% thereafter. The final list included 33 topics, including logistical information, expectations for future health condition, complications, follow-up care, nutrition during treatment, and nutrition during recovery as topics with 100% agreement. Consensus on the source of support was reached for face-to-face contact, written information, information video, and a case manager. Conclusion. This study provides a list of important topics, from the perspectives of HCPs, to guide the systematic provision of education to support EC patients’ self-management during the preoperative phase. Additionally, the most preferred sources of support were face-to-face contact and a case manager.
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食管癌症患者自我管理支持需求核心集的开发:来自医疗保健专业人员的德尔菲研究结果
客观的我们旨在就HCP对食管癌症患者术前阶段自我管理支持信息需求的观点达成共识。方法。根据文献、临床咨询观察和医院患者信息传单,创建了一项调查。HCP使用德尔菲方法对他们对信息重要性的看法进行了两次调查,从“不重要”到“绝对重要”。如果符合预先确定的标准,则将主题纳入第二轮。要列入最后清单,专题必须符合协商一致和稳定的标准。后果确定了64个信息项目和6个支助来源。调查回复率为59%(第一轮116次中有68次),之后为75%。最终名单包括33个主题,包括后勤信息、对未来健康状况的期望、并发症、后续护理、治疗期间的营养和康复期间的营养,这些主题100%一致。通过面对面接触、书面信息、信息视频和案件管理人员,就支持来源达成了共识。结论本研究从HCP的角度提供了一系列重要主题,以指导系统地提供教育,支持EC患者在术前阶段的自我管理。此外,最喜欢的支持来源是面对面接触和个案经理。
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来源期刊
European Journal of Cancer Care
European Journal of Cancer Care 医学-康复医学
CiteScore
4.00
自引率
4.80%
发文量
213
审稿时长
3 months
期刊介绍: The European Journal of Cancer Care aims to encourage comprehensive, multiprofessional cancer care across Europe and internationally. It publishes original research reports, literature reviews, guest editorials, letters to the Editor and special features on current issues affecting the care of cancer patients. The Editor welcomes contributions which result from team working or collaboration between different health and social care providers, service users, patient groups and the voluntary sector in the areas of: - Primary, secondary and tertiary care for cancer patients - Multidisciplinary and service-user involvement in cancer care - Rehabilitation, supportive, palliative and end of life care for cancer patients - Policy, service development and healthcare evaluation in cancer care - Psychosocial interventions for patients and family members - International perspectives on cancer care
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