The patients with intrathecal baclofen pump in the age of COVID-19: a single center study.

IF 1.7 4区 医学 Q4 NEUROSCIENCES International Journal of Neuroscience Pub Date : 2024-12-01 Epub Date: 2023-11-03 DOI:10.1080/00207454.2023.2273769
Ece Unlu Akyuz, Damla Cankurtaran, Nihal Tezel
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Abstract

Purpose: Intrathecal baclofen pump treatment is employed in the treatment of various diseases. Despite the benefits of intrathecal baclofen pump, patients may occasionally encounter severe complications. These complications may necessitate urgent assessment or intervention for patients with intrathecal baclofen pumps. This study aimed to evaluate the intrathecal baclofen pump-related problems, the utilization of health services, physical-psychosocial status, and the quality of life of patients with intrathecal baclofen pumps during the coronavirus disease 2019 pandemic.

Materials and methods: We conducted a cross-sectional, phone-based survey study between 1 June 2021 and 15 July 2021 with a sample of 23 patients with intrathecal baclofen pumps. The patients' quality of life before the implantation of the pump, after one year of implantation, and during the pandemic was evaluated with the 3-level version of EQ-5D.

Results: Catheter migration developed in one of the patients, after which the pump was changed. While the dose of baclofen was altered in eight (38.1%) patients during the pandemic period, the filling period was modified in three (14.3%) patients. While 61.9% of the patients reported that their general health, mobility, spasticity and joint mobility were worse than before the pandemic, 90.5% of the patients stated that their communication and mood were worse than before the pandemic. The 3-level version of EQ-5D and EQ-Visual Analogue Scale scores of the patients were significantly decreased during pandemic (p < .05).

Conclusions: Due to the complications of the intrathecal baclofen pump, its management should continue uninterruptedly during the pandemic period.

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新冠肺炎年龄鞘内注射巴氯芬泵的患者:单中心研究。
研究目的:鞘内注射巴氯芬(ITB)泵治疗各种疾病。尽管ITB泵有好处,但患者可能偶尔会遇到严重的并发症。这些并发症可能需要对使用ITB泵的患者进行紧急评估或干预。本研究旨在评估2019冠状病毒病(新冠肺炎)大流行期间ITB泵相关问题、卫生服务的利用、身心社会状况和ITB泵患者的生活质量。材料和方法:我们在2021年6月1日至2021年7月15日期间对23名使用ITB泵的患者进行了一项基于电话的横断面调查研究。使用三级版本的EQ-5D(EQ-5D-3L)对植入泵前、植入一年后和疫情期间患者的生活质量进行评估。结果:其中一名患者出现导管迁移,之后更换了泵。在疫情期间,8名(38.1%)患者改变了巴氯芬的剂量,3名(14.3%)患者的填充期发生了改变。61.9%的患者报告说,他们的总体健康状况、活动能力、痉挛和关节活动能力比疫情前更差,90.5%的患者表示,他们的沟通和情绪比疫情前差。患者的EQ-5D-3L和EQ视觉模拟量表(EQ-VAS)评分在疫情期间显著降低(p 结论:由于ITB泵的并发症,在疫情期间应继续不间断地进行管理。
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来源期刊
CiteScore
5.10
自引率
0.00%
发文量
132
审稿时长
2 months
期刊介绍: The International Journal of Neuroscience publishes original research articles, reviews, brief scientific reports, case studies, letters to the editor and book reviews concerned with problems of the nervous system and related clinical studies, epidemiology, neuropathology, medical and surgical treatment options and outcomes, neuropsychology and other topics related to the research and care of persons with neurologic disorders.  The focus of the journal is clinical and transitional research. Topics covered include but are not limited to: ALS, ataxia, autism, brain tumors, child neurology, demyelinating diseases, epilepsy, genetics, headache, lysosomal storage disease, mitochondrial dysfunction, movement disorders, multiple sclerosis, myopathy, neurodegenerative diseases, neuromuscular disorders, neuropharmacology, neuropsychiatry, neuropsychology, pain, sleep disorders, stroke, and other areas related to the neurosciences.
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