{"title":"Mental health and lived experience: The value of lived experience expertise in global mental health.","authors":"Claudia Sartor","doi":"10.1017/gmh.2023.24","DOIUrl":null,"url":null,"abstract":"<p><p>There is no disputing the current established global consensus that people with lived experience of a mental health condition (\"people with lived experience\") play an integral role in influencing policy and processes in global mental health. Specifically, the role they hold as agents of change through which they can lead and co-lead projects on mental health, alongside a multidisciplinary team, as recommended in the findings of the report of Lancet Commission on ending stigma and discrimination (Thornicroft et al. [2022], \"The Lancet Commission on ending stigma and discrimination in mental health\", <i>Lancet</i>, 400, 1438-1480). Immense value is associated with their unique expertise not learned through theoretical concept but based on real-life experience. Appreciating their involvement in processes is a human right, supported by international human rights instruments such as the United Nations Convention on the Rights of Persons with Psychosocial Disabilities (2006). However, there remains an expectation that people with lived experience are expected to be involved in processes and service delivery without receiving remuneration for their expertise. This article will provide the basis for which processes must follow the principle of equity; that lived experience expertise ought to be equally compensated for based on equal pay for equal work. In closing, it will provide a recommendation for stakeholders on how to improve upon effective engagement with people with lived experience, leading to meaningful and authentic contributions.</p>","PeriodicalId":48579,"journal":{"name":"Global Mental Health","volume":null,"pages":null},"PeriodicalIF":3.3000,"publicationDate":"2023-06-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10579645/pdf/","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Global Mental Health","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1017/gmh.2023.24","RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2023/1/1 0:00:00","PubModel":"eCollection","JCR":"Q2","JCRName":"PSYCHIATRY","Score":null,"Total":0}
引用次数: 0
Abstract
There is no disputing the current established global consensus that people with lived experience of a mental health condition ("people with lived experience") play an integral role in influencing policy and processes in global mental health. Specifically, the role they hold as agents of change through which they can lead and co-lead projects on mental health, alongside a multidisciplinary team, as recommended in the findings of the report of Lancet Commission on ending stigma and discrimination (Thornicroft et al. [2022], "The Lancet Commission on ending stigma and discrimination in mental health", Lancet, 400, 1438-1480). Immense value is associated with their unique expertise not learned through theoretical concept but based on real-life experience. Appreciating their involvement in processes is a human right, supported by international human rights instruments such as the United Nations Convention on the Rights of Persons with Psychosocial Disabilities (2006). However, there remains an expectation that people with lived experience are expected to be involved in processes and service delivery without receiving remuneration for their expertise. This article will provide the basis for which processes must follow the principle of equity; that lived experience expertise ought to be equally compensated for based on equal pay for equal work. In closing, it will provide a recommendation for stakeholders on how to improve upon effective engagement with people with lived experience, leading to meaningful and authentic contributions.
毫无疑问,目前已确立的全球共识是,有心理健康经历的人(“有心理健康经验的人”)在影响全球心理健康政策和过程中发挥着不可或缺的作用。具体而言,正如《柳叶刀》委员会关于结束污名和歧视的报告(Thornicroft et al.[2022],“《柳叶刀委员会关于结束心理健康中的污名和种族歧视》,《柳叶刀,4001438-1480》)的调查结果所建议的那样,他们作为变革推动者的角色,可以与多学科团队一起领导和共同领导心理健康项目。巨大的价值与他们独特的专业知识有关,这些专业知识不是通过理论概念学习的,而是基于现实生活中的经验。赞赏他们参与进程是一项人权,得到了《联合国心理社会残疾人权利公约》(2006年)等国际人权文书的支持。然而,人们仍然期望有生活经验的人参与流程和服务提供,而不会因其专业知识而获得报酬。这一条将为程序必须遵循公平原则提供依据;生活经验专业知识应该在同工同酬的基础上得到同等补偿。最后,它将为利益相关者提供一项建议,说明如何改进与有生活经验的人的有效接触,从而做出有意义和真实的贡献。
期刊介绍:
lobal Mental Health (GMH) is an Open Access journal that publishes papers that have a broad application of ‘the global point of view’ of mental health issues. The field of ‘global mental health’ is still emerging, reflecting a movement of advocacy and associated research driven by an agenda to remedy longstanding treatment gaps and disparities in care, access, and capacity. But these efforts and goals are also driving a potential reframing of knowledge in powerful ways, and positioning a new disciplinary approach to mental health. GMH seeks to cultivate and grow this emerging distinct discipline of ‘global mental health’, and the new knowledge and paradigms that should come from it.