Ethical Considerations for Engaging Children and Adolescents Living with HIV in Research in African Countries: A Systematic Review.

IF 1.7 4区哲学 Q2 ETHICS Journal of Empirical Research on Human Research Ethics Pub Date : 2023-12-01 Epub Date: 2023-10-23 DOI:10.1177/15562646231208991

Emma Gillette, Winstone Nyandiko, Ashley Chory, Michael Scanlon, Josephine Aluoch, Nandini Choudhury, Daniel Lagat, Celestine Ashimosi, Whitney Biegon, Dennis Munyoro, Janet Lidweye, Jack Nyagaya, Ilene Wilets, Allison DeLong, Rami Kantor, Rachel Vreeman, Violet Naanyu

{"title":"Ethical Considerations for Engaging Children and Adolescents Living with HIV in Research in African Countries: A Systematic Review.","authors":"Emma Gillette, Winstone Nyandiko, Ashley Chory, Michael Scanlon, Josephine Aluoch, Nandini Choudhury, Daniel Lagat, Celestine Ashimosi, Whitney Biegon, Dennis Munyoro, Janet Lidweye, Jack Nyagaya, Ilene Wilets, Allison DeLong, Rami Kantor, Rachel Vreeman, Violet Naanyu","doi":"10.1177/15562646231208991","DOIUrl":null,"url":null,"abstract":"<p><p>Research engaging children and adolescents living with HIV (CALWH) is critical for youth-friendly services and HIV care, and researchers need to ensure that such engagement is ethical. We conducted a systematic review to identify key ethical considerations for the engagement of CALWH in research. The review focused on primary research articles conducted in African countries that examined ethical issues in CALWH engaged in research. Ten studies met the inclusion criteria; the following seven key domains were extracted: 1) justifications for engaging CALWH in research; 2) community involvement; 3) informed consent/assent; 4) caregiver involvement; 5) perceptions of benefits; 6) perception of the risks of involvement; and 7) confidentiality. These domains can inform the ethical engagement of CALWH in research.</p>","PeriodicalId":50211,"journal":{"name":"Journal of Empirical Research on Human Research Ethics","volume":" ","pages":"346-362"},"PeriodicalIF":1.7000,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11325447/pdf/","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Empirical Research on Human Research Ethics","FirstCategoryId":"98","ListUrlMain":"https://doi.org/10.1177/15562646231208991","RegionNum":4,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2023/10/23 0:00:00","PubModel":"Epub","JCR":"Q2","JCRName":"ETHICS","Score":null,"Total":0}

引用次数: 0

Abstract

Research engaging children and adolescents living with HIV (CALWH) is critical for youth-friendly services and HIV care, and researchers need to ensure that such engagement is ethical. We conducted a systematic review to identify key ethical considerations for the engagement of CALWH in research. The review focused on primary research articles conducted in African countries that examined ethical issues in CALWH engaged in research. Ten studies met the inclusion criteria; the following seven key domains were extracted: 1) justifications for engaging CALWH in research; 2) community involvement; 3) informed consent/assent; 4) caregiver involvement; 5) perceptions of benefits; 6) perception of the risks of involvement; and 7) confidentiality. These domains can inform the ethical engagement of CALWH in research.

查看原文

微信好友朋友圈 QQ好友复制链接

本刊更多论文

让感染艾滋病毒的儿童和青少年参与非洲国家研究的伦理考虑：系统综述。

让感染艾滋病毒的儿童和青少年参与研究（CALWH）对于青年友好服务和艾滋病毒护理至关重要，研究人员需要确保这种参与是合乎道德的。我们进行了一项系统的审查，以确定CALWH参与研究的关键伦理考虑因素。审查的重点是在非洲国家进行的初步研究文章，这些文章审查了CALWH从事研究的伦理问题。10项研究符合纳入标准；提取了以下七个关键领域：1）参与CALWH研究的理由；2）社区参与；3）知情同意；4）护理人员参与；5）利益观念；6）对参与风险的认识；以及7）保密性。这些领域可以为CALWH在研究中的伦理参与提供信息。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

求助全文

约1分钟内获得全文去求助

来源期刊

Journal of Empirical Research on Human Research Ethics 医学-医学：伦理

CiteScore

3.50

自引率

7.70%

发文量

审稿时长

>12 weeks

期刊介绍： The Journal of Empirical Research on Human Research Ethics (JERHRE) is the only journal in the field of human research ethics dedicated exclusively to empirical research. Empirical knowledge translates ethical principles into procedures appropriate to specific cultures, contexts, and research topics. The journal''s distinguished editorial and advisory board brings a range of expertise and international perspective to provide high-quality double-blind peer-reviewed original articles.