Helping Adults with Muscular Dystrophy: Rehabilitation Counseling Implications

Roy K. Chen
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Abstract

It is estimated about 200,000 Americans have been diagnosed with Muscular Dystrophy (MD), a neuromuscular disease characterized by gradual degeneration and atrophy of the muscle cells and fibers (Siegel, 1999). Functional limitations associated with MD include cognitive, social, physical/vocational, and emotional functioning. Rehabilitation counselors are advised to use a holistic approach to serving clients with MD. Compassion is key to building a meaningful professional relationship between the client and the rehabilitation counselor. However, rehabilitation counselors should neither communicate an overly pessimistic outlook nor raise false hope.
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帮助患有肌肉萎缩症的成年人:康复咨询的意义
据估计,约有20万美国人被诊断患有肌肉萎缩症(MD),这是一种以肌肉细胞和纤维逐渐退化和萎缩为特征的神经肌肉疾病(Siegel, 1999)。与MD相关的功能限制包括认知、社会、身体/职业和情感功能。康复咨询师被建议采用一种全面的方法来为患有抑郁症的客户服务。同情心是在客户和康复咨询师之间建立有意义的专业关系的关键。然而,康复咨询师既不应该传达过于悲观的前景,也不应该提出虚假的希望。
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