The process of nursing a child with Haddad syndrome

Aneta Kołodziejska, Dominika Kołodzeike, Anna Małecka-Dubiela
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Abstract

Haddad syndrome is a combination of congenital central hypoventilation and Hirschsprung’s disease. This disease is very rare and causes mainly sleep apnoea and problems with intestinal peristalsis. Haddad syndrome is characterised by hereditary disorders of the autonomic nervous system and the lack of nerve ganglia in the distal part of the large intestine. The purpose of the above work is to illustrate the role of the nurse in caring for a child with Haddad syndrome and to present diagnoses and interventions based on the ICNP terminology, which the staff should include in the treatment process. In this work the method of literature analysis as well as the individual case was used. It was also based on interview, observation, and interpretation of the patient’s medical records. The study was conducted in September 2018 during a home visit as part of nursing care for a mechanically ventilated patient. The patient was diagnosed. Eight nursing diagnoses were formulated. These included: apnoea, impaired airway patency, abdominal pain, weakness, underweight, disturbed sleep, lack of appetite, and fatigue. The International Classification of Nursing Practice ICNP ® is a huge source of terms that facilitate, speedup, and make the nurse’s work more effective. It enables the documenting and describing of specific diagnoses, interventions, and results selected and applied to them [6]. The use of an appropriate diet and pharmacotherapy proved to be effective, which improved the patient’s condition and allowed her to return to normal functioning.
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照顾患有哈达德综合症的孩子的过程
哈达德综合征是先天性中枢性通气不足和先天性巨结肠病的结合。这种疾病非常罕见,主要导致睡眠呼吸暂停和肠道蠕动问题。哈达德综合征的特点是自主神经系统的遗传性疾病和大肠远端神经节的缺乏。上述工作的目的是说明护士在照顾患有哈达德综合征的儿童中的作用,并根据ICNP术语提出诊断和干预措施,工作人员应该在治疗过程中包括这些术语。本研究采用了文献分析法和个案分析法。它还基于对患者医疗记录的访谈、观察和解释。该研究于2018年9月在一次家访期间进行,作为对一名机械通气患者护理的一部分。病人被确诊了。制定了8项护理诊断。这些症状包括:呼吸暂停、气道通畅受损、腹痛、虚弱、体重不足、睡眠紊乱、食欲不振和疲劳。国际护理实践分类ICNP®是一个巨大的术语来源,促进,加快,使护士的工作更有效。它能够记录和描述特定的诊断、干预措施和选择并应用于他们的结果。使用适当的饮食和药物治疗被证明是有效的,这改善了病人的病情,使她恢复了正常的功能。
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