Resilience and family quality of life in parents of children with autism spectrum disorders.

Clinical child psychology and psychiatry Pub Date : 2024-01-01 Epub Date: 2023-11-01 DOI:10.1177/13591045231208577
Federico Cardelle-Pérez, Cristina Banacloig-Delgado, Lorena García-García
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Abstract

Introduction: Resilience and quality of life (QOL) can involve a positive approach in group interventions for parents of children with autism spectrum disorders (ASD). This study aims to evaluate resilience and family QOL at the start of a psychoeducational group.

Methods: Cross-sectional assessment of resilience and family QOL used the Family Quality of Life Scale (ECVF) and 14-item Resilience Scale (RS-14).

Results: The study group showed high levels of resilience. Parents considered the resources/support domain crucial, although satisfaction in this area was comparatively lower. Concerns about low satisfaction with available resources and support were notable. Gender differences were observed but not statistically significant.

Discussion: The study's findings support prior research on parental resilience in families of children with ASD. The literature on the QOL for these families presents mixed findings. The importance of parental involvement in service planning is highlighted.

Conclusions: This study emphasizes the importance of resilience in parents of children with ASD, suggesting it as a potential therapeutic target. The findings underscore the need to address the perceived low quality of available resources and support. Further investigation is needed.

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自闭症谱系障碍儿童父母的复原力和家庭生活质量。
引言:韧性和生活质量(QOL)可以涉及到对自闭症谱系障碍(ASD)儿童父母的群体干预的积极方法。本研究旨在评估心理教育小组开始时的复原力和家庭生活质量。方法:采用家庭生活质量量表(ECVF)和14项复原力量表(RS-14)对复原力和家庭生活质量进行横断面评估。结果:研究组表现出较高的恢复力。家长们认为资源/支持领域至关重要,尽管这方面的满意度相对较低。值得注意的是,人们对现有资源和支助的满意度很低。观察到性别差异,但没有统计学意义。讨论:该研究结果支持了先前关于自闭症儿童家庭父母适应力的研究。关于这些家庭生活质量的文献呈现出喜忧参半的结果。强调了父母参与服务规划的重要性。结论:这项研究强调了ASD儿童父母恢复力的重要性,表明它是一个潜在的治疗靶点。调查结果强调,有必要解决现有资源和支持质量低的问题。需要进一步调查。
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