T-M Rintala MNsc, E Paavilainen PhD, P Åstedt-Kurki PhD
{"title":"Everyday life of a family with diabetes as described by adults with type 1 diabetes","authors":"T-M Rintala MNsc, E Paavilainen PhD, P Åstedt-Kurki PhD","doi":"10.1002/edn.234","DOIUrl":null,"url":null,"abstract":"<p>Diabetes mellitus is a common chronic disease. According to previous research, family has an important role in the management of diabetes among children and adolescents.</p><p>The aim of this study was to describe how adult people with type 1 diabetes experience everyday life in their families.</p><p>The Straussian grounded theory method was used to analyse data collected by interviewing 19 people with type 1 diabetes.</p><p>On the basis of the data, eight concepts describing different views on everyday living with diabetes were generated: managing hypoglycaemia; balancing self-management needs; performing daily routines in the family; living with changing feelings; diabetes being invisibly present; protecting the family's well-being; the family members variously contributing to the self-management; and learning to live with diabetes in the family.</p><p>In conclusion, everyday life in families includes many different issues and family members are involved in the self-management of diabetes in many ways. In the interests of developing family-centred education and care, it is important to understand how adult people with type 1 diabetes experience everyday life within their families. Eur Diabetes Nursing 2013; 10(3): 86–90</p>","PeriodicalId":100496,"journal":{"name":"European Diabetes Nursing","volume":"10 3","pages":"86-90"},"PeriodicalIF":0.0000,"publicationDate":"2013-11-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1002/edn.234","citationCount":"24","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"European Diabetes Nursing","FirstCategoryId":"1085","ListUrlMain":"https://onlinelibrary.wiley.com/doi/10.1002/edn.234","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 24
Abstract
Diabetes mellitus is a common chronic disease. According to previous research, family has an important role in the management of diabetes among children and adolescents.
The aim of this study was to describe how adult people with type 1 diabetes experience everyday life in their families.
The Straussian grounded theory method was used to analyse data collected by interviewing 19 people with type 1 diabetes.
On the basis of the data, eight concepts describing different views on everyday living with diabetes were generated: managing hypoglycaemia; balancing self-management needs; performing daily routines in the family; living with changing feelings; diabetes being invisibly present; protecting the family's well-being; the family members variously contributing to the self-management; and learning to live with diabetes in the family.
In conclusion, everyday life in families includes many different issues and family members are involved in the self-management of diabetes in many ways. In the interests of developing family-centred education and care, it is important to understand how adult people with type 1 diabetes experience everyday life within their families. Eur Diabetes Nursing 2013; 10(3): 86–90