Assessing self-care perception among caregivers of dementia patients in a rural medical college of Darjeeling District, West Bengal, India

Abstract

Introduction: Dementia is a prevalent cause of morbidity and runs a downhill course. Patients progressively become completely dependent on their caregivers who are usually untrained family members. The resultant burden causes caregiver burnout making them vulnerable to diseases. The objective of this study is to assess perception and practice of self care among caregivers and assess any barriers faced. Materials and Methods: A cross sectional qualitative study with 18 eligible caregivers was conducted from September to December 2019 using the appropriate study tools and techniques. Content analysis was done. Results: Majority were aware that self care was required though only five people practiced it. Medical attention was sought by all. Barriers faced were workload and lack of knowhow. Need for comprehensive domiciliary care structured module with graded nonpharmacological interventions and capacity building was reiterated. Conclusion: Perception regarding self care was present, but practice lacking and barriers faced were mostly lack of training and time constraints. However, a larger study is recommended.