How Information Sharing about Care Recipients by Family Caregivers Impacts Family Communication

Abstract

Previous research has shown that tracking technologies have the potential to help family caregivers optimize their coping strategies and improve their relationships with care recipients. In this paper, we explore how sharing the tracked data (i.e., caregiving journals and patient's conditions) with other family caregivers affects home care and family communication. Although previous works suggested that family caregivers may benefit from reading the records of others, sharing patients' private information might fuel negative feelings of surveillance and violation of trust for care recipients. To address this research question, we added a sharing feature to the previously developed tracking tool and deployed it for six weeks in the homes of 15 family caregivers who were caring for a depressed family member. Our findings show how the sharing feature attracted the attention of care recipients and helped the family caregivers discuss sensitive issues with care recipients.