The Sense of Responsibility for own Health and the Influence of the Disease on Daily Functioning Among Patients with Multiple Sclerosis

Beata Gąsowska, M. Chorąży, K. Snarska, C. Dolińska
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Abstract

Introduction. MS is characterized by a large variety of symptoms, which negatively affects the functioning and quality of life of patients. Aim. The purpose of the work is determination of the impact of Multiple Sclerosis on the daily functioning of patients and assessment of the sense of responsibility for one’s own health among patients with Multiple Sclerosis. Material and Methods. The study included 97 patients suffering from Multiple Sclerosis, treated at the Department of Neurology, University Hospital in Białystok. Study group consisted of 73 women and 24 men. The research has been conducted using the diagnostic survey method with following research tools: Activities of Daily Living scale; Instrumental Activities of Daily Living scale; Multidimensional Health Locus of Control and a self-constructed questionnaire. Results. The average age of the respondents was 52 (±10.36) and was comparable for women and men — 52.33 (±10.97) years and 51.79 (±8.42) years, respectively. The duration of the disease was on average 8 years (±3.87). Among the respondents, from the beginning of the disease, on average 5.02 exacerbations of MS (±3.08) have been observed. The most significant problem for MS patients was sphincter control (45.36%), independent bath (34.02%) and use of the toilet (31.96%). According to Lawton’s scale, patients with MS had most difficulties going out for shopping and getting outside walking distance. With the duration of the disease, the internal location of health control decreased significantly. Conclusions. As a result of increasing restrictions on the independent functioning of patients with Multiple Sclerosis, the sense of control over their own health is located in external factors such as chance and the influence of others. (JNNN 2019;8(3):102–111) Key Words: Multiple Sclerosis, health, functional status
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多发性硬化症患者对自身健康的责任感及疾病对日常功能的影响
介绍。多发性硬化症的特点是症状多种多样,对患者的功能和生活质量产生负面影响。的目标。这项工作的目的是确定多发性硬化症对患者日常功能的影响,并评估多发性硬化症患者对自己健康的责任感。材料和方法。该研究包括97名多发性硬化症患者,在Białystok大学医院神经内科接受治疗。研究小组由73名女性和24名男性组成。本研究采用诊断调查法,研究工具如下:日常生活活动量表;日常生活工具活动量表;多维健康控制点及自编问卷。结果。调查对象的平均年龄为52(±10.36)岁,男女年龄相当,分别为52.33(±10.97)岁和51.79(±8.42)岁。病程平均8年(±3.87)。在应答者中,从发病开始,平均观察到5.02次MS加重(±3.08)。MS患者最显著的问题是括约肌控制(45.36%)、独立洗澡(34.02%)和使用厕所(31.96%)。根据劳顿量表,多发性硬化症患者外出购物和走出步行距离是最困难的。随着病程的延长,健康控制的内部定位明显下降。结论。由于多发性硬化症患者的独立功能受到越来越多的限制,他们对自身健康的控制感取决于外界因素,如机遇和他人的影响。[j] .神经网络学报,2019;8(3):102-111
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