The relationship between the stroke survivors’ functional status and their informal caregivers’ burden and quality of life

IF 0.4 Q4 MEDICINE, RESEARCH & EXPERIMENTAL AIMS Medical Science Pub Date : 2019-02-12 DOI:10.3934/MEDSCI.2019.1.115
Aysegul Celik, B. Kara
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引用次数: 5

Abstract

Background and purpose: Stroke is a major cause of disability and affects the lives of both the patients and their caregivers. The purpose of the study was to determine the relationship between the functional status of stroke survivors and the care burden and quality of life of their informal caregivers. The relationship between selected socio-demographic variables and the caregivers’ caregiving experiences, quality of life, and care burden also was investigated. Methods: This cross-sectional study consisted of 100 patients and informal caregivers dyads. The Patient and Caregiver Information Form was used to collect demographic data; the Functional Independence Measure (FIM) and Barthel Index (BI) were used to assess functional status; the Caregiver Burden Scale (CBS) and 36-Item Short-Form Health Survey Quality of Life Scale (SF36-QLS) were used to assess the caregivers’ burden and quality of life. Data were evaluated using descriptive statistics, Kolmogorov-Smirnov test, and parametric and non-parametric tests. Results: The mean FIM and BI scores of the patients were 61.0 ± 30.0 and 42.6 ± 28.3, respectively. The caregivers’ average score in the SF36-QLS subscale of general health perception was 51.7 ± 22.7; their average CBS score was 39.2 ± 13.8. The caregivers’ quality of life was found to be moderate to high in the domains of physical function, social function, mental health, bodily pain, and general health, but low in the domains of physical role function, emotional role function, and vitality. There was a negative correlation between the average FIM and BI scores of stroke survivors and their caregivers’ CBS scores or scores on the SF36-QLS subscale of general health perception. Conclusion: There is a relationship between the stroke survivors’ functional status and their caregivers’ burden and quality of life. The caregivers’ quality of life decreased and their care burden increased as the functional status of the patients deteriorated.
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脑卒中幸存者功能状况与非正式照护者负担及生活质量的关系
背景和目的:中风是致残的主要原因,影响患者及其护理人员的生活。本研究的目的是确定中风幸存者的功能状态与其非正式照顾者的照顾负担和生活质量之间的关系。所选社会人口学变量与照护者的照护经验、生活质量和照护负担之间的关系也被调查。方法:本横断面研究由100名患者和非正式护理人员组成。使用患者和护理人员信息表收集人口统计数据;功能独立度量(FIM)和Barthel指数(BI)评价功能状态;采用照顾者负担量表(CBS)和36项简明健康调查生活质量量表(SF36-QLS)评估照顾者负担和生活质量。采用描述性统计、Kolmogorov-Smirnov检验、参数检验和非参数检验对数据进行评价。结果:患者FIM和BI平均评分分别为61.0±30.0和42.6±28.3。照护者一般健康知觉SF36-QLS子量表平均得分为51.7±22.7分;平均CBS评分为39.2±13.8。照顾者的生活质量在身体功能、社会功能、心理健康、身体疼痛和一般健康方面处于中高水平,但在身体角色功能、情感角色功能和活力方面处于低水平。脑卒中幸存者的平均FIM和BI得分与其照顾者的CBS得分或SF36-QLS一般健康感知亚量表得分之间存在负相关。结论:脑卒中幸存者的功能状况与照顾者负担和生活质量有关。随着患者功能状况的恶化,护理人员的生活质量下降,护理负担加重。
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来源期刊
AIMS Medical Science
AIMS Medical Science MEDICINE, RESEARCH & EXPERIMENTAL-
自引率
14.30%
发文量
20
审稿时长
12 weeks
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