Defining Through Expansion: Conducting Asynchronous Remote Communities (ARC) Research with Stigmatized Groups

Abstract

Researchers in HCI have typically relied on face to face (FtF) methods for recruitment and data collection in their research with people living with HIV, whereas social scientists have adopted computer-mediated approaches to address concerns about data validity and access to this stigmatized population. In this paper, we use the asynchronous remote community (ARC) research method to leverage HCI instruments in an online format. ARC successfully engaged people living with HIV in terms of participation and retention by providing a safe space to discuss their experiences. By expanding on past ARC studies, we contribute to an ongoing conversation about defining ARC and working towards increased data validity -- especially in stigmatized communities.