A qualitative study of the sources of chronic obstructive pulmonary disease-related emotional distress.

IF 3.5 3区 医学 Q2 RESPIRATORY SYSTEM Chronic Respiratory Disease Pub Date : 2023-01-01 DOI:10.1177/14799731231163873
Diana Zanolari, Daniela Händler-Schuster, Christian Clarenbach, Gabriela Schmid-Mohler
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引用次数: 2

Abstract

Objective: The aim of this study is to identify the sources of illness-related emotional distress from the perspective of individuals living with mild to severe chronic obstructive pulmonary disease (COPD).

Methods: A qualitative study design with purposive sampling was applied at a Swiss University Hospital. Eleven interviews were conducted with individuals who suffered from COPD. To analyze data, framework analysis was used, guided by the recently presented model of illness-related emotional distress.

Results: Six main sources for COPD-related emotional distress were identified: physical symptoms, treatment, restricted mobility, restricted social participation, unpredictability of disease course and COPD as stigmatizing disease. Additionally, life events, multimorbidity and living situation were found to be sources of non-COPD-related distress. Negative emotions ranged from anger, sadness, and frustration to desperation giving rise to the desire to die. Although most patients experience emotional distress regardless of the severity of COPD, the sources of distress appear to have an individual manifestation.

Discussion: There is a need for a careful assessment of emotional distress among patients with COPD at all stages of the disease to provide patient-tailored interventions.

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慢性阻塞性肺疾病相关情绪困扰来源的定性研究
目的:本研究旨在从轻至重度慢性阻塞性肺疾病(COPD)患者的角度确定疾病相关情绪困扰的来源。方法:采用有目的抽样的定性研究设计。对患有慢性阻塞性肺病的个人进行了11次访谈。为了分析数据,采用框架分析,以最近提出的疾病相关情绪困扰模型为指导。结果:确定了COPD相关情绪困扰的六个主要来源:躯体症状、治疗、活动受限、社会参与受限、病程不可预测性和COPD作为污名化疾病。此外,生活事件、多重疾病和生活状况也被发现是非copd相关窘迫的来源。消极情绪包括愤怒、悲伤、沮丧和绝望,这些情绪会引发对死亡的渴望。尽管大多数患者无论COPD的严重程度如何都会经历情绪困扰,但困扰的来源似乎有个体表现。讨论:有必要仔细评估COPD患者在疾病各个阶段的情绪困扰,以提供适合患者的干预措施。
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来源期刊
Chronic Respiratory Disease
Chronic Respiratory Disease RESPIRATORY SYSTEM-
CiteScore
5.90
自引率
7.30%
发文量
47
审稿时长
11 weeks
期刊介绍: Chronic Respiratory Disease is a peer-reviewed, open access, scholarly journal, created in response to the rising incidence of chronic respiratory diseases worldwide. It publishes high quality research papers and original articles that have immediate relevance to clinical practice and its multi-disciplinary perspective reflects the nature of modern treatment. The journal provides a high quality, multi-disciplinary focus for the publication of original papers, reviews and commentary in the broad area of chronic respiratory disease, particularly its treatment and management.
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