Out-of-hours community palliative care: a national survey of hospice providers.

Anne Fee, Felicity Hasson, Paul Slater, Sheila Payne, Tracey McConnell, Dori-Anne Finlay, Sonja McIlfatrick
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Abstract

Background: Community-based palliative out-of-hours services operate outside normal working hours. However, little is known about the provision and delivery of such care.

Aim: The aim of this study was to describe types of provision and delivery of out-of-hours palliative care services provided by UK hospices.

Methods: Survey questionnaires were emailed to 150 adult hospices in the UK. Quantitative data were analysed using SPSS and qualitative data subjected to thematic analysis.

Findings: Responding hospices (n=57) provided the following types of support: telephone advice 72% (n=41); care at home 70% (n=40); and rapid response 35% (n=20). There were variations between services regarding referral mechanisms, availability and workforce, and integration with statutory services was limited.

Conclusion: Variation in the type of provision and delivery of out-of-hours palliative care services alongside limited integration with statutory care have contributed to inequity of access to community-based palliative care, and potentially suboptimal patient and informal caregiver outcomes.

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非工作时间的社区姑息关怀:一项针对安宁疗护服务提供者的全国性调查。
背景:基于社区的非工作时间姑息关怀服务在正常工作时间之外开展。目的:本研究旨在描述英国临终关怀机构提供的非工作时间姑息关怀服务的类型和提供情况:通过电子邮件向英国 150 家成人安宁疗护机构发送调查问卷。采用 SPSS 对定量数据进行分析,并对定性数据进行主题分析:做出回应的临终关怀机构(n=57)提供了以下类型的支持:电话咨询 72% (n=41);居家护理 70% (n=40);快速响应 35% (n=20)。各服务机构在转介机制、可用性和劳动力方面存在差异,与法定服务机构的整合也很有限:结论:提供和交付非工作时间姑息关怀服务的类型存在差异,同时与法定关怀服务的整合也很有限,这些都造成了获得社区姑息关怀服务的不公平,并可能导致患者和非正式照护者的治疗效果不理想。
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来源期刊
CiteScore
1.20
自引率
10.00%
发文量
65
期刊介绍: Since its launch in 1995, International Journal of Palliative Nursing (IJPN) has been committed to promoting excellence in palliative and hospice care. It is now established as the leading journal for nurses working in this most demanding profession, covering all aspects of palliative care nursing in a way which is intelligent, helpful and accessible, and so useful in daily practice. The aim of IJPN is to provide nurses with essential information to help them deliver the best possible care and support for their patients. Each issue contains an unparalleled range of peer-reviewed clinical, professional and educational articles, as well as helpful and informative information on practical, legal and policy issues of importance to all palliative nurses.
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