The Long or the Post of It? Temporality, Suffering, and Uncertainty in Narratives Following COVID-19.

IF 1.2 0 HUMANITIES, MULTIDISCIPLINARY Journal of Medical Humanities Pub Date : 2023-11-14 DOI:10.1007/s10912-023-09824-y
Katharine Cheston, Marta-Laura Cenedese, Angela Woods
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Abstract

Long COVID affects millions of individuals worldwide but remains poorly understood and contested. This article turns to accounts of patients' experiences to ask: What might narrative be doing both to long COVID and for those who live with the condition? What particular narrative strategies were present in 2020, as millions of people became ill, en masse, with a novel virus, which have prevailed three years after the first lockdowns? And what can this tell us about illness and narrative and about the importance of literary critical approaches to the topic in a digital, post-pandemic age? Through a close reading of journalist Lucy Adams's autobiographical accounts of long COVID, this article explores the interplay between individual illness narratives and the collective narrativizing (or making) of an illness. Our focus on temporality and suffering knits together the phenomenological and the social with the aim of opening up Adams's narrative and ascertaining a deeper understanding of what it means to live with the condition. Finally, we look to the stories currently circulating around long COVID and consider how illness narratives-and open, curious, patient-centered approaches to them-might shape medicine, patient involvement, and critical medical humanities research.

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长篇大论还是短论?COVID-19后叙事中的时间性、苦难和不确定性。
长期以来,COVID影响着全世界数百万人,但人们对它的了解和争议仍然很少。这篇文章转向对患者经历的描述,提出了这样一个问题:叙述对长期COVID和那些患有这种疾病的人来说可能会做些什么?在第一次封锁三年后,数百万人集体感染了一种新型病毒,在这种情况下,2020年出现了哪些特别的叙事策略?这能告诉我们关于疾病和叙事的什么,以及在数字化、后流行病时代,文学批评方法对这个主题的重要性吗?通过仔细阅读记者露西·亚当斯(Lucy Adams)对COVID的自传体描述,本文探讨了个人疾病叙述与疾病的集体叙述(或制造)之间的相互作用。我们对时间性和苦难的关注将现象学和社会结合在一起,目的是打开亚当斯的叙事,并确定对生活在这种情况下意味着什么的更深层次的理解。最后,我们看看目前围绕COVID流传的故事,并考虑疾病叙事以及开放、好奇、以患者为中心的方法如何影响医学、患者参与和关键的医学人文研究。
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来源期刊
Journal of Medical Humanities
Journal of Medical Humanities HUMANITIES, MULTIDISCIPLINARY-
CiteScore
1.90
自引率
11.10%
发文量
33
期刊介绍: Journal of Medical Humanities publishes original papers that reflect its enlarged focus on interdisciplinary inquiry in medicine and medical education. Such inquiry can emerge in the following ways: (1) from the medical humanities, which includes literature, history, philosophy, and bioethics as well as those areas of the social and behavioral sciences that have strong humanistic traditions; (2) from cultural studies, a multidisciplinary activity involving the humanities; women''s, African-American, and other critical studies; media studies and popular culture; and sociology and anthropology, which can be used to examine medical institutions, practice and education with a special focus on relations of power; and (3) from pedagogical perspectives that elucidate what and how knowledge is made and valued in medicine, how that knowledge is expressed and transmitted, and the ideological basis of medical education.
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