Demographic Factors Relate to Autism Diagnostic Certainty: Implications for Enhancing Equitable Diagnosis Among Youth.

IF 4.2 1区 心理学 Q1 PSYCHOLOGY, CLINICAL Journal of Clinical Child and Adolescent Psychology Pub Date : 2025-01-01 Epub Date: 2023-04-03 DOI:10.1080/15374416.2023.2191282
Christina G McDonnell, Theresa Andrzejewski, Saily Gomez Batista, Elizabeth A DeLucia, Megan Fok, Kasey Stanton
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Abstract

Objective: Autism diagnosis is fraught with inequities, including misdiagnosis and delayed identification that disproportionately affect minoritized youth. Aspects of clinician decision-making, particularly diagnostic certainty, may contribute to these inequities. Little is known about how closely clinician certainty corresponds with autistic traits, nor whether certainty relates to socio-demographic factors.

Method: Autistic youth from the Simons Simplex Collection (N = 2,853) completed assessments after which clinicians rated how certain they were that the child met autism diagnostic criteria. Core clinical factors included clinician-observed (Autism Diagnostic Observation Schedule; ADOS) and parent-reported autistic traits (Social Communication Questionnaire), and an overall IQ score.

Results: Clinician certainty was moderately positively associated with parent-reported and observed autistic traits and was just as strongly negatively associated with IQ. Socio-demographic factors significantly associated with certainty, even accounting for clinical measures. Lower income and older child age related to less certainty. In contrast, clinicians rated higher certainty for youth identified as Hispanic, Black or African American, or Asian. Race and income also moderated the concordance between certainty with clinical factors. The agreement between higher ADOS scores and higher certainty was significantly weaker for lower-income families. The association between lower IQ and higher certainty was non-significant for Asian youth.

Conclusions: Diagnostic certainty ratings do not necessarily correspond closely with the level of autistic traits, and clinician perception of autism diagnosis may be related to demographic factors. Caution is needed when relying on clinician certainty to inform diagnosis. Future research on diagnostic practices is urgently needed among diverse and minoritized communities.

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与自闭症诊断确定性相关的人口统计学因素:对提高青少年公平诊断的意义。
目的:自闭症诊断充满了不公平,包括误诊和延迟识别,不成比例地影响少数族裔青年。临床医生决策的各个方面,特别是诊断的确定性,可能导致这些不公平。很少有人知道临床医生的确定性与自闭症特征的关系有多密切,也不知道确定性是否与社会人口因素有关。方法:来自Simons Simplex Collection的自闭症青少年(N = 2,853)完成了评估,之后临床医生评估了他们对儿童符合自闭症诊断标准的确定程度。核心临床因素包括临床观察(自闭症诊断观察表);ADOS)和父母报告的自闭症特征(社会沟通问卷),以及总体智商得分。结果:临床医生的确定性与父母报告和观察到的自闭症特征呈中度正相关,与智商呈强烈负相关。社会人口因素与确定性显著相关,甚至考虑到临床措施。收入越低,孩子年龄越大,确定性越低。相比之下,临床医生对被认定为西班牙裔、黑人或非裔美国人或亚洲人的年轻人给出了更高的确定性。种族和收入也缓和了确定性与临床因素之间的一致性。在低收入家庭中,较高的ADOS分数与较高的确定性之间的一致性明显较弱。低智商和高确定性之间的关联在亚洲青年中不显著。结论:诊断确定性评分并不一定与自闭症特征水平密切相关,临床医生对自闭症诊断的认知可能与人口统计学因素有关。在依靠临床医生的确定性来进行诊断时,需要谨慎。迫切需要在多样化和少数群体中开展诊断实践的未来研究。
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来源期刊
CiteScore
9.70
自引率
4.80%
发文量
58
期刊介绍: The Journal of Clinical Child and Adolescent Psychology (JCCAP) is the official journal for the Society of Clinical Child and Adolescent Psychology, American Psychological Association. It publishes original contributions on the following topics: (a) the development and evaluation of assessment and intervention techniques for use with clinical child and adolescent populations; (b) the development and maintenance of clinical child and adolescent problems; (c) cross-cultural and sociodemographic issues that have a clear bearing on clinical child and adolescent psychology in terms of theory, research, or practice; and (d) training and professional practice in clinical child and adolescent psychology, as well as child advocacy.
期刊最新文献
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