Human genetics education as part of the Japanese Cancer Education Comprehensive Support Project.

IF 1.5 Q4 GENETICS & HEREDITY Journal of Community Genetics Pub Date : 2023-04-01 DOI:10.1007/s12687-022-00623-x
Fumi Yamada-Kurebayashi, Motoko Sasaki, Asami Kuga, Risa Kojima, Hidehiko Miyake
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引用次数: 1

Abstract

In Japan, cancer education has been initiated with children as a measure against cancer. Cancer genome medicine, which is a social implementation, includes aspects of genetic medicine. For this reason, it is assumed that content related to "genetics" is also necessary in cancer education. To investigate the actual situation regarding the teaching of genetics in cancer education, we conducted a questionnaire survey of schoolteachers involved in cancer education; these schoolteachers belonged to the model school of the Cancer Education Comprehensive Support Project. Regarding genetic content, we asked questions related to two aspects: "the molecular genetic mechanisms of cancer" and "the phenomenon of sharing cancer in the family." The results showed that about 60% of the teachers had experience teaching content related to the molecular genetic mechanisms of cancer and the phenomenon of sharing cancer in the family. While many teachers felt that teaching genetics in cancer education was necessary, they also felt that there were difficulties in doing so: 65.2% for content related to the molecular genetic mechanisms of cancer and 70.8% for that related to the phenomenon of sharing cancer in the family. It is important to properly treat cancer as a genetic disease, and it is necessary to examine government curriculum guidelines and establish a collaborative system among other subjects. In addition, the involvement of specialists in genetic medicine and psychosocial support is expected to improve teachers' genetic literacy as well as to communicate with students with consideration for their family history.

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人类遗传学教育是日本癌症教育综合支持计划的一部分。
在日本,作为预防癌症的一项措施,已经开始对儿童进行癌症教育。癌症基因组医学是一种社会实施,它包含了基因医学的各个方面。因此,我们认为,在癌症教育中,与“遗传学”相关的内容也是必要的。为了了解癌症教育中遗传学教学的实际情况,我们对从事癌症教育的学校教师进行了问卷调查;这些教师属于癌症教育综合支持工程示范学校。关于遗传内容,我们提出了两个方面的问题:“癌症的分子遗传机制”和“家族共享癌症的现象”。结果显示,约60%的教师有过与癌症分子遗传机制和家族共享癌症现象相关的教学内容。许多教师认为在癌症教育中进行遗传学教学是必要的,但也认为有困难:65.2%的教师认为与癌症分子遗传机制有关的内容,70.8%的教师认为与家庭共享癌症现象有关的内容。将癌症作为遗传疾病进行正确的治疗是非常重要的,有必要研究政府的课程指南,并建立与其他学科的合作体系。此外,基因医学和社会心理支持专家的参与有望提高教师的基因素养,并在考虑到学生的家族史的情况下与他们交流。
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来源期刊
Journal of Community Genetics
Journal of Community Genetics GENETICS & HEREDITY-
CiteScore
3.30
自引率
5.30%
发文量
54
期刊介绍: The Journal of Community Genetics is an international forum for research in the ever-expanding field of community genetics, the art and science of applying medical genetics to human communities for the benefit of their individuals. Community genetics comprises all activities which identify persons at increased genetic risk and has an interest in assessing this risk, in order to enable those at risk to make informed decisions. Community genetics services thus encompass such activities as genetic screening, registration of genetic conditions in the population, routine preconceptional and prenatal genetic consultations, public education on genetic issues, and public debate on related ethical issues. The Journal of Community Genetics has a multidisciplinary scope. It covers medical genetics, epidemiology, genetics in primary care, public health aspects of genetics, and ethical, legal, social and economic issues. Its intention is to serve as a forum for community genetics worldwide, with a focus on low- and middle-income countries. The journal features original research papers, reviews, short communications, program reports, news, and correspondence. Program reports describe illustrative projects in the field of community genetics, e.g., design and progress of an educational program or the protocol and achievement of a gene bank. Case reports describing individual patients are not accepted.
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