Self-compassion Intervention for Parents of Children with Developmental Disabilities: A Feasibility Study

IF 1.3 Q3 EDUCATION, SPECIAL Advances in Neurodevelopmental Disorders Pub Date : 2022-11-19 DOI:10.1007/s41252-022-00305-2
Ameena N. Ahmed, Stacey P. Raj
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引用次数: 1

Abstract

Objectives

Parents of children with developmental disabilities (DDs) experience greater psychological distress (e.g., stress and depression) compared to parents of children without DDs. Self-compassion (i.e., responding with compassion to oneself during times of stress and difficulty) is associated with greater self-care as well as lower levels of stress, depression, and internalized stigma among parents of children with DDs. In this study, we tested the feasibility of a 4-week brief, asynchronous, online intervention targeting self-compassion among parents of children with DDs.

Methods

Participants were fifty parents (48 mothers; 2 fathers) of children with DDs. Participants’ ages ranged from 25 to 62 years (M = 42.1 years, SD = 7.9 years), and 88% of participants had one child with a DD, and the remaining parents had two or more children with DDs. Child diagnoses included Down syndrome, autism spectrum disorder, and intellectual disability. Feasibility was assessed in five domains (i.e., acceptability, demand, implementation, practicability, and limited efficacy) using a combination of self-report measures, qualitative feedback, and data on attrition.

Results

Most parents (84%) completed ≥ 3 modules, and 74% completed all four modules. Almost all parents (> 90%) reported that they would recommend the intervention to others. Paired-samples t-tests demonstrated significant pre-intervention to post-intervention increases in self-compassion and well-being, and significant reductions in parent depression and stress.

Conclusions

Overall, data support feasibility of the 4-week intervention targeting parent self-compassion and provide preliminary efficacy data that need to be followed up in a larger randomized control trial.

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自我同情干预对发育障碍儿童父母的可行性研究
与无发育障碍儿童的父母相比,发育障碍儿童的父母经历了更大的心理困扰(如压力和抑郁)。自我同情(即,在压力和困难时期对自己的同情)与更强的自我照顾以及更低的压力、抑郁和内化耻辱水平有关。在这项研究中,我们测试了一个为期4周的简短的,异步的,在线干预的可行性,目标是自闭症儿童的父母的自我同情。方法研究对象为50名父母(48名母亲;(2)患有发育障碍儿童的父亲。参与者的年龄从25岁到62岁不等(M = 42.1岁,SD = 7.9岁),88%的参与者有一个孩子患有DD,其余的父母有两个或更多的孩子患有DD。儿童诊断包括唐氏综合症、自闭症谱系障碍和智力残疾。可行性评估在五个领域(即,可接受性,需求,实施,实用性和有限的有效性),使用自我报告测量,定性反馈和损耗数据的组合。结果大多数家长(84%)完成了≥3个模块,74%的家长完成了全部4个模块。几乎所有的家长(90%)报告说他们会向其他人推荐这种干预措施。配对样本t检验表明,干预前和干预后,自我同情和幸福感显著增加,父母抑郁和压力显著减少。结论总体而言,数据支持以父母自我同情为目标的4周干预的可行性,并提供了初步的疗效数据,需要在更大规模的随机对照试验中进行随访。
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来源期刊
Advances in Neurodevelopmental Disorders
Advances in Neurodevelopmental Disorders Social Sciences-Social Sciences (miscellaneous)
CiteScore
2.10
自引率
0.00%
发文量
72
期刊介绍: Advances in Neurodevelopmental Disorders publishes high-quality research in the broad area of neurodevelopmental disorders across the lifespan. Study participants may include individuals with:Intellectual and developmental disabilitiesGlobal developmental delayCommunication disordersLanguage disordersSpeech sound disordersChildhood-onset fluency disorders (e.g., stuttering)Social (e.g., pragmatic) communication disordersUnspecified communication disordersAutism spectrum disorder (ASD)Attention-deficit/hyperactivity disorder (ADHD), specified and unspecifiedSpecific learning disordersMotor disordersDevelopmental coordination disordersStereotypic movement disorderTic disorders, specified and unspecifiedOther neurodevelopmental disorders, specified and unspecifiedPapers may also include studies of participants with neurodegenerative disorders that lead to a decline in intellectual functioning, including Alzheimer’s disease, amyotrophic lateral sclerosis, Creutzfeldt-Jakob disease, vascular dementia, Lewy body dementia, frontotemporal dementia, corticobasal degeneration, Huntington’s disease, and progressive supranuclear palsy. The journal includes empirical, theoretical and review papers on a large variety of issues, populations, and domains, including but not limited to: diagnosis; incidence and prevalence; and educational, pharmacological, behavioral and cognitive behavioral, mindfulness, and psychosocial interventions across the life span. Animal models of basic research that inform the understanding and treatment of neurodevelopmental disorders are also welcomed. The journal is multidisciplinary and multi-theoretical, and encourages research from multiple specialties in the social sciences using quantitative and mixed-method research methodologies.
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