Development of the Gross Motor Function Family Report (GMF-FR) for Children with Cerebral Palsy.

IF 0.9 4区 医学 Q4 REHABILITATION Physiotherapy Canada Pub Date : 2023-02-08 eCollection Date: 2023-01-01 DOI:10.3138/ptc-2021-0006
Paula S C Chagas, Peter Rosenbaum, F Virginia Wright, Lesley Pritchard, Marilyn Wright, Aline Martins Toledo, Ana Cristina R Camargos, Egmar Longo, Hércules R Leite
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Abstract

Purpose: To describe the initial steps in the development of a family-completed, modified version of the Gross Motor Function Measure (GMFM-88) to report gross motor function of young people with cerebral palsy in their natural environments. Methods: Development of the Gross Motor Function - Family Report (GMF-FR) was based on expert opinion involving 13 experienced clinicians and researchers, in four steps: (1) item identification to target items that reflect functional gross motor performance; (2) item selection; (3) critical analysis of the items; and (4) item and scoring modification. Results: Several modifications to existing items and scoring were made, including wording changes to optimize ease of families' understanding, the addition of photographs to illustrate all items, changes to the items to enable use of furniture instead of specialized equipment, and modifications to scoring criteria to ensure a focus on functional motor skills. Ultimately, 30 items were selected, and specific testing/scoring instructions were created for each item. Conclusions: GMF-FR is a new family-report tool, based on the GMFM-88. When validated, it can be used as a telehealth outcome measure to capture family-reported functional motor skill performance in home and community environments.

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开发脑瘫儿童粗大运动功能家庭报告 (GMF-FR)。
目的:描述开发由家庭填写的粗大运动功能测量(GMFM-88)修订版的初始步骤,以报告脑瘫青少年在自然环境中的粗大运动功能。方法:粗大运动功能--家庭报告(GMF-FR)的开发基于专家意见,有 13 位经验丰富的临床医生和研究人员参与,分为四个步骤:(1) 确定反映粗大运动功能表现的项目;(2) 选择项目;(3) 对项目进行批判性分析;(4) 修改项目和评分。结果:对现有的项目和评分标准进行了若干修改,包括修改措辞以方便家庭理解、增加照片以说明所有项目、修改项目以使用家具而不是专门设备,以及修改评分标准以确保侧重于功能性运动技能。最终选定了 30 个项目,并为每个项目制定了具体的测试/评分说明。结论:GMF-FR 是基于 GMFM-88 的一种新的家庭报告工具。经过验证后,该工具可用作远程保健结果测量工具,以获取家庭和社区环境中家庭报告的功能性运动技能表现。
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来源期刊
Physiotherapy Canada
Physiotherapy Canada REHABILITATION-
CiteScore
1.90
自引率
20.00%
发文量
93
审稿时长
>12 weeks
期刊介绍: Physiotherapy Canada is the official, scholarly, refereed journal of the Canadian Physiotherapy Association (CPA), giving direction to excellence in clinical science and reasoning, knowledge translation, therapeutic skills and patient-centred care. Founded in 1923, Physiotherapy Canada meets the diverse needs of national and international readers and serves as a key repository of inquiries, evidence and advances in the practice of physiotherapy. Physiotherapy Canada publishes the results of qualitative and quantitative research including systematic reviews, meta analyses, meta syntheses, public/health policy research, clinical practice guidelines, and case reports. Key messages, clinical commentaries, brief reports and book reviews support knowledge translation to clinical practice. In addition to delivering authoritative, original scientific articles and reports of significant clinical studies, Physiotherapy Canada’s editorials and abstracts are presented in both English and French, expanding the journal’s reach nationally and internationally. Key messages form an integral part of each research article, providing a succinct summary for readers of all levels. This approach also allows readers to quickly get a feel for ‘what is already known’ and ‘what this study adds to’ the subject. Clinician’s commentaries for key articles assist in bridging research and practice by discussing the article’s impact at the clinical level. The journal also features special themed series which bring readers up to date research supporting evidence-informed practice. The Canadian Physiotherapy Association (CPA) is the national professional association representing almost 15,000 members distributed throughout all provinces and territories. CPA’s mission is to provide leadership and direction to the physiotherapy profession, foster excellence in practice, education and research, and promote high standards of health in Canada.
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