Serge Perrot, Guillaume Roucoux, Philippe Bertin, Catherine Beauvais, Françoise Alliot-Launois, Olivier Chassany, Martin Duracinsky
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引用次数: 0
Abstract
Purpose: To analyse and compare patients' and healthcare professionals' (HPs) perspectives concerning patient care pathways for painful osteoarthritis (OA).
Patients and methods: We performed a qualitative study of two focus groups corresponding to eight patients with painful OA and eight HPs involved in OA management.
Results: Six key themes emerged from the interviews: (1) representations of OA, (2) OA pain, (3) quality of life, (4) care pathways, (5) actors involved in the care pathway, and (6) treatments. Both groups considered general practitioners, pharmacists and physiotherapists to be first-line HPs, and no well-defined OA specialist was identified. Patients and HPs reported similar difficulties concerning the adaptation of management to individual cases, late diagnosis and treatment, whereas only patients mentioned financial issues. Communication difficulties were identified as a major problem both between patients and HPs, and between HPs. Patients reported a lack of knowledge concerning pain and OA. The coordination between the various HPs is required, with education on both pain and OA. Several possible solutions were put forward by both patients and HPs.
Conclusion: The care pathways of patients with painful OA are complex, with an unclear definition of the roles of the various HPs and suboptimal coordination. The role of HPs should be defined and collaboration between HPs developed.
目的:分析并比较患者和医护人员(HPs)对疼痛性骨关节炎(OA)患者护理路径的看法:我们对两个焦点小组进行了定性研究,这两个焦点小组分别对应八名疼痛性 OA 患者和八名参与 OA 管理的医护人员:访谈中出现了六个关键主题:(1) OA 的表征;(2) OA 疼痛;(3) 生活质量;(4) 护理路径;(5) 护理路径中的参与者;(6) 治疗。两组人都认为全科医生、药剂师和物理治疗师是一线医疗保健人员,没有发现明确的 OA 专家。患者和医疗保健人员报告了类似的困难,包括根据个人情况调整治疗方法、晚期诊断和治疗,而只有患者提到了经济问题。沟通困难被认为是患者和医疗保健人员之间以及医疗保健人员之间的主要问题。患者表示对疼痛和 OA 缺乏了解。各医疗机构之间需要进行协调,并开展有关疼痛和 OA 的教育。患者和医务人员都提出了几种可能的解决方案:结论:疼痛性 OA 患者的护理路径非常复杂,各医疗保健机构的角色定义不明确,协调性也不理想。应明确医疗保健人员的作用,发展医疗保健人员之间的合作。
期刊介绍:
Musculoskeletal Care is a peer-reviewed journal for all health professionals committed to the clinical delivery of high quality care for people with musculoskeletal conditions and providing knowledge to support decision making by professionals, patients and policy makers. This journal publishes papers on original research, applied research, review articles and clinical guidelines. Regular topics include patient education, psychological and social impact, patient experiences of health care, clinical up dates and the effectiveness of therapy.