Development and preliminary validation of a health-related family quality of life instrument.

IF 1.2 4区 医学 Q4 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Health Care for Women International Pub Date : 2024-01-01 Epub Date: 2023-04-19 DOI:10.1080/07399332.2023.2190984
M Elise Radina, Deonni P Stolldorf, Vaughn G Sinclair, Mary S Dietrich, Melissa A Adair, Terrah Akard, Sheila Ridner
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Abstract

The researchers' aims for this preliminary study was to develop an instrument, guided by the Theory of Health-related Family Quality of Life, to measure health-related family quality of life (HR-FQoL) as perceived by women with cancer. The researchers used a two phase design for instrument development: (1) establishing face validity of a 38-item instrument with an expert panel and patient review, and (2) focusing on the internal structure and construct validity of the instrument with responses from female patients (N = 236) with a cancer diagnosis (breast, gynecologic). The researchers identified a final 25-item HR-FQoL instrument with four sub-scales that each captured multiple concepts within the Theory of HR-FQoL. The resulting instrument maybe used by researchers and clinicians to assess various aspects of health-related family quality of life among female breast and gynecological cancer survivors.

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开发并初步验证与健康相关的家庭生活质量工具。
研究人员进行这项初步研究的目的是在健康相关家庭生活质量理论的指导下开发一种工具,用于测量癌症女性患者感知的健康相关家庭生活质量(HR-FQoL)。研究人员采用了两个阶段的工具开发设计:(1) 通过专家小组和患者审查建立 38 个项目工具的表面效度;(2) 根据癌症诊断(乳腺癌、妇科癌症)女性患者(N = 236)的反馈,重点研究工具的内部结构和构造效度。研究人员最终确定了一个包含 25 个项目的 HR-FQoL 工具,其中有四个子量表,每个子量表都捕捉到了 HR-FQoL 理论中的多个概念。研究人员和临床医生可使用该工具评估女性乳腺癌和妇科癌症幸存者与健康相关的家庭生活质量的各个方面。
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来源期刊
CiteScore
3.30
自引率
7.10%
发文量
91
期刊介绍: Health Care for Women International is a critically acclaimed, international publication that provides a unique interdisciplinary approach to health care and related topics that concern women around the globe. Published twelve times a year, Health Care for Women International includes the newest research, theories, and issues in the fields of public health, social science, health care practice, and health care policy. Scholars and practitioners address topics such as cultural differences, alternative lifestyles, domestic violence, public health issues associated with the aging of the population, maternal morbidity and mortality, infectious diseases, and a host of other gender-based ethical issues. The editor also encourages discussion topics, inviting readers to comment on articles that focus on specific aspects of health issue for women.
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