Gaps in the System: Supporting People Living with Dementia.

IF 2 3区 社会学 Q2 GERONTOLOGY Journal of Aging & Social Policy Pub Date : 2024-09-02 Epub Date: 2023-07-02 DOI:10.1080/08959420.2023.2226341
Madeline King, Allie Peckham, Husayn Marani, Monika Roerig, Seles Yung, Kimberlyn McGrail, Yuchi Young, James Shaw, Greg Marchildon
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Abstract

Persons living with dementia and their caregivers often face challenges in accessing support for their complex needs. This study aims to understand how program administrators, people living with dementia, unpaid caregivers, and decision-makers perceive specific dementia care programs and whether they are adequately meeting the needs of individuals living with dementia. Forty semi-structured interviews were conducted between 2018 and 2020 in five North American jurisdictions. Three main gaps were identified (1) disconnected system infrastructure, (2) lack of comprehensive services to meet diverse needs, and (3) inconsistent understandings of dementia. Despite having programs in place, there remain significant limitations in systems that could be addressed to adequately meet the needs of individuals living with dementia and their caregivers.

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系统中的空白:支持痴呆症患者。
痴呆症患者及其照护者在获得满足其复杂需求的支持方面常常面临挑战。本研究旨在了解项目管理人员、痴呆症患者、无偿照顾者和决策者如何看待特定的痴呆症护理项目,以及这些项目是否充分满足了痴呆症患者的需求。2018 年至 2020 年期间,我们在北美五个辖区进行了 40 次半结构式访谈。发现了三个主要差距:(1)系统基础设施脱节;(2)缺乏满足不同需求的综合服务;(3)对痴呆症的理解不一致。尽管已经制定了相关计划,但系统中仍存在严重的局限性,需要加以解决,以充分满足痴呆症患者及其照顾者的需求。
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来源期刊
CiteScore
13.00
自引率
3.90%
发文量
57
期刊介绍: The Journal of Aging & Social Policy offers a platform for insightful contributions from an international and interdisciplinary group of policy analysts and scholars. It provides an in-depth examination and analysis of critical phenomena that impact aging and the development and implementation of programs for the elderly from a global perspective, with a broad scope that encompasses not only the United States but also regions including Europe, the Middle East, Australia, Latin America, Asia, and the Asia-Pacific rim. The journal regularly addresses a wide array of issues such as long-term services and supports, home- and community-based care, nursing-home care, assisted living, long-term care financing, financial security, employment and training, public and private pension coverage, housing, transportation, health care access, financing, and quality, family dynamics, and retirement. These topics are of significant importance to the field of aging and social policy, reflecting the journal's commitment to presenting a comprehensive view of the challenges and solutions related to aging populations around the world.
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