A descriptive analysis of hospitalized adolescents facing chronic illnesses with different durations of disease.

IF 1.8 4区医学 Q3 HEALTH CARE SCIENCES & SERVICES Chronic Illness Pub Date : 2024-06-01 Epub Date: 2023-06-12 DOI:10.1177/17423953231181409

Giovana Ribeiro de Souza Favaretto, Regina Celia Bueno Machado, Mariana Ragassi Urbano, Júlia Dutra Balsanelli, Sarah Conchon Costa, Sandra Odebrecht Vargas Nunes

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Abstract

Objectives: To assess characteristics of hospitalized adolescents facing chronic diseases, correlating the perceptions of their illness, quality of life and the prevalence of risk behaviors, considering gender and the diseases' durations.

Methods: The sample consisted of 61 adolescents, aged between 10 and 19 years, with chronic diseases, hospitalized at the University Hospital of the State University of Londrina. They answered a questionnaire and the scales World Health Organization Quality of Life (WHOQOL-BREF) and Illness Perception Questionnaire (IPQ). They were divided in groups, according to the durations of the disease: group 1 (up to 4 years) and group 2 (5 years or more).

Results: Group 2 demonstrated higher leisure activity (p = 0.02) and more painful symptoms (p = 0.02). In WHOQOL-BREF, group 2 had a higher quality of life in the domain on environment (p = 0.02) and a higher total score (p = 0.04). Lower scores on the IPQ were associated with higher scores on the WHOQOL-BREF. Positive correlation was found between WHOQOL-BREF total score and years of disease, in which male presented higher scores.

Conclusions: These findings may alert to the need for more knowledge about the diseases and the importance of encouraging ways to improve quality of life and care to reduce risky behaviors.

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对面临不同病程的慢性病住院青少年进行描述性分析。

目的评估住院的慢性病青少年的特征，将他们对疾病的看法、生活质量和危险行为的发生率联系起来，同时考虑到性别和疾病的持续时间：样本包括在隆德里纳州立大学附属医院住院治疗的 61 名患有慢性疾病的青少年，年龄在 10 至 19 岁之间。他们回答了调查问卷以及世界卫生组织生活质量量表（WHOQOL-BREF）和疾病感知问卷（IPQ）。根据患病时间将他们分为两组：第1组（4年以下）和第2组（5年或以上）：结果：第 2 组患者的休闲活动较多（P = 0.02），疼痛症状较重（P = 0.02）。在 WHOQOL-BREF 中，第 2 组在环境领域的生活质量更高（p = 0.02），总分更高（p = 0.04）。IPQ 分数越低，WHOQOL-BREF 分数越高。WHOQOL-BREF总分与患病年数呈正相关，其中男性得分更高：这些发现提醒人们需要了解更多有关疾病的知识，以及鼓励改善生活质量和护理以减少危险行为的重要性。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Chronic Illness Multiple-

CiteScore

3.80

自引率

0.00%

发文量

期刊介绍： Chronic illnesses are prolonged, do not resolve spontaneously, and are rarely completely cured. The most common are cardiovascular diseases (hypertension, coronary artery disease, stroke and heart failure), the arthritides, asthma and chronic obstructive pulmonary disease, diabetes and epilepsy. There is increasing evidence that mental illnesses such as depression are best understood as chronic health problems. HIV/AIDS has become a chronic condition in those countries where effective medication is available.