“这只会让你作为一名雇员更容易受到伤害”:了解残疾耻辱感对帕金森病患者就业的影响。

IF 1.8 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Chronic Illness Pub Date : 2024-12-01 Epub Date: 2023-07-04 DOI:10.1177/17423953231185386
Kelsi Carolan
{"title":"“这只会让你作为一名雇员更容易受到伤害”:了解残疾耻辱感对帕金森病患者就业的影响。","authors":"Kelsi Carolan","doi":"10.1177/17423953231185386","DOIUrl":null,"url":null,"abstract":"<p><strong>Objective: </strong>Parkinson's disease (PD) is one of the most common neurodegenerative diseases in the United States, affecting approximately 1 million Americans. However, there is a dearth of research on the employment experiences of individuals with PD. This research article makes a crucial contribution to the literature by examining the role of disability stigma in shaping employment options in PD, with relevance to the experiences of adults with chronic and/or progressive diseases more broadly.</p><p><strong>Methods: </strong>The author conducted individual semi-structured interviews with 23 adults under the age of 65 with PD. Interviews were audio-recorded and transcribed. The author utilized an integrated approach to analysis, primarily employing a thematic analysis approach. Additionally, a narrative analysis strategy, the Listening Guide, was integrated into the broader thematic analysis to deepen analysis of discrimination and stigma.</p><p><strong>Results: </strong>Findings demonstrate how internalized, anticipated and/or experienced disability-related stigma profoundly affects employment experiences, influencing participants' work outcome expectations and acting as an employment barrier.</p><p><strong>Discussion: </strong>Findings have implications for health care practice and education, disability policy, early intervention strategies after the onset of PD and priorities for future research.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"655-668"},"PeriodicalIF":1.8000,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"\\\"It just makes you more vulnerable as an employee\\\": Understanding the effects of disability stigma on employment in Parkinson's disease.\",\"authors\":\"Kelsi Carolan\",\"doi\":\"10.1177/17423953231185386\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Objective: </strong>Parkinson's disease (PD) is one of the most common neurodegenerative diseases in the United States, affecting approximately 1 million Americans. However, there is a dearth of research on the employment experiences of individuals with PD. This research article makes a crucial contribution to the literature by examining the role of disability stigma in shaping employment options in PD, with relevance to the experiences of adults with chronic and/or progressive diseases more broadly.</p><p><strong>Methods: </strong>The author conducted individual semi-structured interviews with 23 adults under the age of 65 with PD. Interviews were audio-recorded and transcribed. The author utilized an integrated approach to analysis, primarily employing a thematic analysis approach. Additionally, a narrative analysis strategy, the Listening Guide, was integrated into the broader thematic analysis to deepen analysis of discrimination and stigma.</p><p><strong>Results: </strong>Findings demonstrate how internalized, anticipated and/or experienced disability-related stigma profoundly affects employment experiences, influencing participants' work outcome expectations and acting as an employment barrier.</p><p><strong>Discussion: </strong>Findings have implications for health care practice and education, disability policy, early intervention strategies after the onset of PD and priorities for future research.</p>\",\"PeriodicalId\":48530,\"journal\":{\"name\":\"Chronic Illness\",\"volume\":\" \",\"pages\":\"655-668\"},\"PeriodicalIF\":1.8000,\"publicationDate\":\"2024-12-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Chronic Illness\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1177/17423953231185386\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2023/7/4 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"Q3\",\"JCRName\":\"HEALTH CARE SCIENCES & SERVICES\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Chronic Illness","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1177/17423953231185386","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2023/7/4 0:00:00","PubModel":"Epub","JCR":"Q3","JCRName":"HEALTH CARE SCIENCES & SERVICES","Score":null,"Total":0}
引用次数: 0

摘要

目的:帕金森病(PD)是美国最常见的神经退行性疾病之一,影响了大约100万美国人。然而,关于PD患者就业经历的研究却很缺乏。这篇研究文章通过研究残疾耻辱感在PD患者就业选择中的作用,并与慢性和/或进行性疾病的成年人的经历更广泛地相关,对文献做出了重要贡献。方法:对23例65岁以下PD患者进行半结构化访谈。采访录音和文字记录。作者采用了综合分析方法,主要采用了主题分析方法。此外,将叙事分析策略《倾听指南》纳入更广泛的专题分析,以深化对歧视和污名的分析。结果:研究结果表明,内化的、预期的和/或经历的残疾相关耻辱如何深刻地影响就业经历,影响参与者的工作结果预期,并成为就业障碍。讨论:研究结果对卫生保健实践和教育、残疾政策、PD发病后的早期干预策略和未来研究的重点具有重要意义。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
查看原文
分享 分享
微信好友 朋友圈 QQ好友 复制链接
本刊更多论文
"It just makes you more vulnerable as an employee": Understanding the effects of disability stigma on employment in Parkinson's disease.

Objective: Parkinson's disease (PD) is one of the most common neurodegenerative diseases in the United States, affecting approximately 1 million Americans. However, there is a dearth of research on the employment experiences of individuals with PD. This research article makes a crucial contribution to the literature by examining the role of disability stigma in shaping employment options in PD, with relevance to the experiences of adults with chronic and/or progressive diseases more broadly.

Methods: The author conducted individual semi-structured interviews with 23 adults under the age of 65 with PD. Interviews were audio-recorded and transcribed. The author utilized an integrated approach to analysis, primarily employing a thematic analysis approach. Additionally, a narrative analysis strategy, the Listening Guide, was integrated into the broader thematic analysis to deepen analysis of discrimination and stigma.

Results: Findings demonstrate how internalized, anticipated and/or experienced disability-related stigma profoundly affects employment experiences, influencing participants' work outcome expectations and acting as an employment barrier.

Discussion: Findings have implications for health care practice and education, disability policy, early intervention strategies after the onset of PD and priorities for future research.

求助全文
通过发布文献求助,成功后即可免费获取论文全文。 去求助
来源期刊
Chronic Illness
Chronic Illness Multiple-
CiteScore
3.80
自引率
0.00%
发文量
38
期刊介绍: Chronic illnesses are prolonged, do not resolve spontaneously, and are rarely completely cured. The most common are cardiovascular diseases (hypertension, coronary artery disease, stroke and heart failure), the arthritides, asthma and chronic obstructive pulmonary disease, diabetes and epilepsy. There is increasing evidence that mental illnesses such as depression are best understood as chronic health problems. HIV/AIDS has become a chronic condition in those countries where effective medication is available.
期刊最新文献
Development and validation of a broadly applicable instrument to measure patients' health promotion and empowerment process in chronic disease. Personal variation in patient-centered relevance Index based on individual characteristics and medical conditions among patients with diabetes Mellitus in Korea. Relationship between parent-adolescent communication and parent involvement in adolescent Type 1 diabetes management, parent/family wellbeing and glycaemic control. Patients' perception towards chronic disease self-management and its program: A cross-sectional survey. Effectiveness of peer mentoring and self-monitoring to improve blood pressure control in a vulnerable population in Argentina: Pragmatic randomized open-label controlled trial.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
现在去查看 取消
×
提示
确定
0
微信
客服QQ
Book学术公众号 扫码关注我们
反馈
×
意见反馈
请填写您的意见或建议
请填写您的手机或邮箱
已复制链接
已复制链接
快去分享给好友吧!
我知道了
×
扫码分享
扫码分享
Book学术官方微信
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术
文献互助 智能选刊 最新文献 互助须知 联系我们:info@booksci.cn
Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。
Copyright © 2023 Book学术 All rights reserved.
ghs 京公网安备 11010802042870号 京ICP备2023020795号-1