开发和评估亲属保持量表,并将其应用于识别非裔美国人家庭网络中的核心影响者。

IF 1.5 Q4 GENETICS & HEREDITY Journal of Community Genetics Pub Date : 2023-12-01 Epub Date: 2023-08-31 DOI:10.1007/s12687-023-00665-9
Caitlin G Allen, Colleen M McBride, Cam Escoffery, Yue Guan, Clarissa Hood, Jingsong Zaho, Gene Brody, Weihua An
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引用次数: 0

摘要

促进有关遗传性疾病风险的家庭沟通是家庭系统理论高度相关的一个领域。"保持亲属关系 "这一概念是家庭系统理论中的一个构想,它可以支持促进有关遗传性疾病风险的家庭沟通。然而,人们对亲属关系以及是否可以利用亲属关系来鼓励家庭就遗传风险进行交流的研究还很不够。本报告的目的是提出一个扩大的亲属关系概念,将结构功能视角(角色概念)和过渡行为(技能概念)区分开来,并开发和评估一个量表,以便在非裔美国人社区卫生工作者样本中检验这一论断。我们通过四个步骤编制了量表:利用概念分析和内容效度编制项目、在全国样本中编制量表(n = 312)、利用探索性因子分析进行量表评估(n = 52)以及缩减量表。然后,我们提出了一些关联假设,以表明所开发的亲属保持量表是否在评估特定的家庭角色或一系列行为。我们的研究结果包括制定了首个关于亲属关系的定量测量方法(9 项量表和 15 项量表)。9 项量表的模型拟合度(CFI = 0.97,AFGI = 0.89,RMSEA = 0.09,SMRM = 0.06)和 15 项量表的模型拟合度(CFI = 0.97,AFGI = 0.89,RMSEA = 0.06,SMRM = 0.05)。这些发现使我们能够对亲属关系对信息共享和健康决策的作用进行更严谨的研究。研究结果还表明,与历史上将亲属关系保持作为一种角色的结构功能概念化相反,亲属关系保持也可以被概念化为一种行为或一系列可改变的行为。最终,亲属关系保持量表可用于在各种理论模型和框架中对亲属关系保持进行操作化,指导干预措施的开发以鼓励或训练亲属关系保持行为,并检验家庭在亲属关系保持密度方面是否存在差异的假设。
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Developing and assessing a kin keeping scale with application to identifying central influencers in African American family networks.

Promoting family communication about inherited disease risk is an arena in which family systems theory is highly relevant. One family systems' construct that can support promotion of family communication regarding inherited disease risk is the notion of "kin keeping." However, kin keeping and whether it might be capitalized on to encourage family communication about inherited risk has been understudied. The goal of this report was to propose a broadened conceptualization of kin keeping that distinguishes between a structural functional perspective (role conceptualization) and transitional behaviors (skill conceptualization), and to develop and evaluate a scale that would enable this assertion to be tested among a sample of African American community health workers. We developed a scale using four steps: item development using concept analysis and content validity, scale development among a national sample (n = 312), scale evaluation using exploratory factor analysis (n = 52), and scale reduction. We then posed suppositions of associations that would indicate whether the developed kin keeping measure was assessing a specific family role or set of behaviors. Our results included the development of the first quantitative measure of kin keeping (9- and 15-item scales). Model fit for 9-item scale (CFI = 0.97, AFGI = 0.89, RMSEA = 0.09, SMRM = 0.06) and model fit for 15-item scale (CFI = 0.97, AFGI = 0.89, RMSEA = 0.06, SMRM = 0.05). These findings allow us to move toward more rigorous research about the role of kin keeping on information sharing and health decision making. Results also suggest that, contrary to the historical structural functional conceptualization of kin keeping as a role, kin keeping might also be conceptualized as a behavior or set of modifiable behaviors. Ultimately, the kin keeping scale could be used to operationalize kin keeping in various theoretical models and frameworks, guide intervention development to encourage or train for kin keeping behaviors, and test assumptions of whether families vary in the density of kin keeping.

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来源期刊
Journal of Community Genetics
Journal of Community Genetics GENETICS & HEREDITY-
CiteScore
3.30
自引率
5.30%
发文量
54
期刊介绍: The Journal of Community Genetics is an international forum for research in the ever-expanding field of community genetics, the art and science of applying medical genetics to human communities for the benefit of their individuals. Community genetics comprises all activities which identify persons at increased genetic risk and has an interest in assessing this risk, in order to enable those at risk to make informed decisions. Community genetics services thus encompass such activities as genetic screening, registration of genetic conditions in the population, routine preconceptional and prenatal genetic consultations, public education on genetic issues, and public debate on related ethical issues. The Journal of Community Genetics has a multidisciplinary scope. It covers medical genetics, epidemiology, genetics in primary care, public health aspects of genetics, and ethical, legal, social and economic issues. Its intention is to serve as a forum for community genetics worldwide, with a focus on low- and middle-income countries. The journal features original research papers, reviews, short communications, program reports, news, and correspondence. Program reports describe illustrative projects in the field of community genetics, e.g., design and progress of an educational program or the protocol and achievement of a gene bank. Case reports describing individual patients are not accepted.
期刊最新文献
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