复杂个性化干预对着色性干皮病患者光保护行为变化的可接受性和影响。

IF 3.5 2区 心理学 Q1 PSYCHOLOGY, CLINICAL British Journal of Health Psychology Pub Date : 2023-07-06 DOI:10.1111/bjhp.12675
Jessica Walburn, Lesley Foster, Vera Araújo-Soares, Robert Sarkany, John Weinman, Kirby Sainsbury, Myfanwy Morgan
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引用次数: 0

摘要

目的:严格的光保护是预防罕见着色性干皮病(XP)患者皮肤癌症的唯一方法。我们对患者对高度个性化、多组分干预措施“XPAND”的体验和反应进行了定性过程评估,该干预措施旨在影响成年XP患者光保护不足的心理社会决定因素。设计:对15名参与随机对照试验的患者进行定性研究。方法:半结构化访谈探讨了可接受性、光保护的变化以及行为变化的归因。分析采用了框架方法。结果:参与者对XPAND成分的质量和范围以及与个人光保护屏障的相关性的看法绝大多数是积极的。所有参与者都报告说,对至少一种光保护活动的依从性有所改善,近三分之二的参与者注意到多项活动都有所改善。参与者认为,他们光保护行为的改善受到不同变化机制的影响。防晒霜的使用主要是由短信提示的习惯形成促进的,而佩戴光防护面罩则受到一对一训练中学习的策略的影响,以克服对看起来与众不同的担忧。参与者描述的一般自信心的增强和XPAND的感知支持促进了更广泛的变化。结论:需要在国际XP人群中探索XPAND的反应,然后进行适应和评估,以确定它是否有利于其他皮肤癌症风险较高的患者群体。对行为改变方法的影响包括复杂的多层面干预措施的可接受性、动态个性化的重要性以及行为改变机制的互动性质。
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Acceptability and influence of a complex personalized intervention on changes in photoprotection behaviours among people with xeroderma pigmentosum

Objectives

Rigorous photoprotection is the only means to prevent skin cancer in people with the rare condition of xeroderma pigmentosum (XP). We conducted a qualitative process evaluation of patient experiences and responses to a highly personalized, multi-component intervention, ‘XPAND’, designed to influence the psychosocial determinants of inadequate photoprotection among adults with XP.

Design

Qualitative study of 15 patients following participation in a RCT.

Methods

Semi-structured interviews explored acceptability, changes in photoprotection and attributions for behavioural changes. Analysis followed a framework approach.

Results

Participants were overwhelmingly positive in their views of the quality and range of components of XPAND and the relevance to their personal photoprotection barriers. All participants reported improved adherence to at least one photoprotection activity and nearly two-thirds of participants noted improvements across multiple activities. Participants believed improvements in their photoprotection behaviours were influenced by different change mechanisms. Sunscreen application, was mainly facilitated by habit formation, prompted by text messages, whereas the wearing of a photoprotective face buff was influenced by strategies, learnt during one-to-one sessions, to overcome worry about looking different. Enhancement of general self-confidence and perceived support from XPAND described by participants facilitated change more broadly.

Conclusions

Exploration of responses to XPAND is required in the international XP population, followed by adaptation and evaluation to see if it could benefit other patient groups at higher risk of skin cancer. Implications for approaches to behaviour change include the acceptability of complex multidimensional interventions, the importance of dynamic personalization and the interactive nature of behaviour change mechanisms.

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来源期刊
British Journal of Health Psychology
British Journal of Health Psychology PSYCHOLOGY, CLINICAL-
CiteScore
14.10
自引率
1.30%
发文量
58
期刊介绍: The focus of the British Journal of Health Psychology is to publish original research on various aspects of psychology that are related to health, health-related behavior, and illness throughout a person's life. The journal specifically seeks articles that are based on health psychology theory or discuss theoretical matters within the field.
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