多语成人自闭症的观点与经验:一项定性分析。

Kathryn Nolte, Sue Fletcher-Watson, Antonella Sorace, Andrew Stanfield, Bérengère G Digard
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引用次数: 0

摘要

背景:人们对自闭症和双语的综合经历知之甚少,导致自闭症患者在多语言环境中或对语言感兴趣的人得不到支持。虽然大多数现有的研究都集中在自闭症双语者的语言和认知特征,或父母的经历上,但对自闭症多语者的生活经历知之甚少。方法:为了解决这个问题,本研究调查了自闭症和多语言对54名多语言自闭症成年人生活的影响,这些成年人完成了一项评估自闭症双语和多语言的在线调查。我们对调查的开放式问题的回答进行了主题分析,以探索学习语言的动机以及自闭症和多语言的感知好处。结果:在样本中有广泛的语言概况,具有不同的熟练程度,学习年龄和学习环境。受访者认为自闭症对语言学习既有积极的影响,也有消极的影响。他们报告了习得多种语言的各种激励因素,包括社会方面和语言学习的倾向。受访者报告了多种语言的许多好处,如教育、就业或休闲机会;社交技巧和对他人的理解;对自己的能力有信心;以及与家人、朋友和全世界自闭症群体的关系。结论:不同于以往针对自闭症多语者的案例研究,这里涉及的更大样本为这一被忽视人群的概况和经历提供了有价值的见解。重要的是,自闭症患者可以从多语言学习中获益良多。这些发现将对语言教育实践以及多语言家庭和支持他们的从业者产生影响。Lay summary:为什么要做这项研究?我们想了解在一个通常认为自闭症和多语言不能共存的世界里,既是自闭症又是多语言是什么感觉。人们对自闭症和双语症的结合了解甚少。这导致自闭症患者在双语环境中或对语言感兴趣的人得不到很好的支持。大多数现有的研究都集中在自闭症双语者的语言和心理能力上,或者是父母的经历上。然而,很少有研究关注自闭症多语者本身的生活经历。这项研究的目的是什么?本研究的目的是了解多语言成人自闭症患者的经历。我们关注他们的学习动机,以及自闭症和多语言的好处。研究人员做了什么?54名会多种语言的自闭症成年人完成了一份为会两种语言和多种语言的自闭症人士设计的在线问卷。调查问卷包括关于受访者的语言历史和语言概况的问题。还有一些开放式问题,涉及受访者学习语言的动机,以及他们既是自闭症患者又是多语言者的一般经历。我们分析并总结了对这些开放式问题的回答,以了解多语言自闭症成年人的经历。研究的结果是什么?我们的样本有不同的语言背景和经验。受访者认为自闭症对语言学习既有利也有弊。他们报告了语言学习的一系列动机,包括语言学习的倾向。他们认为人际关系既是学习语言的动力,也是使用多种语言的好处。受访者认为,掌握多种语言给他们带来了许多休闲、旅游、教育和就业的机会。他们认为掌握多种语言提高了他们的自信心。他们还认为,掌握多种语言增加了他们对自闭症的认识和理解,使他们能够与更广泛的自闭症人群建立联系。这些发现对已知的知识有什么补充?先前对多语自闭症患者的研究只涉及一两个参与者。这项研究中涉及的更大的自闭症多语种群体为这一被忽视的人群的生活经历提供了宝贵的见解。研究中有哪些潜在的弱点?在线问卷最初不是为了收集生活经历的深入数据而设计的。这意味着这些问题包含很少的提示:受访者能够讨论他们的经历中对他们最重要的方面。结果中没有具体的主题并不意味着他们没有经验,而仅仅是参与者没有自发地提到它们。未来的研究应该以我们的发现为基础,并关注具体的主题,如学习环境或机会。 这些发现将如何帮助现在或将来的自闭症成年人?这些发现将通过突出自闭症成年人语言特征、能力和经历的多样性和丰富性来帮助他们。这将促使家庭、教育工作者和从业者在多语言环境中更好地支持和包容自闭症患者或对语言感兴趣的人。
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Perspectives and Experiences of Autistic Multilingual Adults: A Qualitative Analysis.

Background: The combined experience of autism and bilingualism is poorly understood, leading to poor support for autistic people in multilingual environments or those interested in languages. While most available studies focus on the language and cognitive profiles of autistic bilinguals, or on the experiences of parents, little is known about the lived experiences of autistic multilinguals.

Methods: To address this question, this study examined the impact of autism and multilingualism on the lives of 54 autistic multilingual adults who completed an online survey assessing the profiles of autistic bi- and multilinguals. We conducted a thematic analysis of responses to the survey's open-ended questions to explore motivations for learning languages and the perceived benefits of being both autistic and multilingual.

Results: There was a wide range of language profiles in the sample, with various levels of proficiency, ages of acquisition, and learning environments. Respondents felt that being autistic can both positively and negatively influence language learning. They reported various motivating factors for the acquisition of multiple languages, including social aspects and a predisposition for language learning. Respondents reported many benefits of multilingualism, such as educational, employment, or leisure opportunities; social skills and understanding of other people; self-confidence in their own abilities; and relationships with family, friends, and the worldwide autistic community.

Conclusions: Unlike previous work with autistic multilinguals involving case studies, the larger sample involved here offers valuable insight into the profiles and experiences of this overlooked population. Importantly, autistic people can experience numerous benefits from multilingualism. These findings will have implications for language education practices as well as for multilingual families and the practitioners who support them.

Lay summary: Why was this study done?: We wanted to understand what it feels like to be both autistic and multilingual, in a world where it is often assumed that both cannot go together. The combined experience of autism and bilingualism is poorly understood. This leads to poor support for autistic people in bilingual environments or for those interested in languages. Most studies available focus on the language and mental abilities of autistic bilinguals, or on the experiences of parents. However, very few studies focus on the lived experiences of autistic multilinguals themselves.What was the purpose of this study?: The purpose of this study was to understand the experiences of autistic multilingual adults. We focused on their learning motivations and the perceived benefits of being autistic and multilingual.What did the researchers do?: Fifty-four autistic multilingual adults completed an online questionnaire designed for autistic bi- and multilinguals. The questionnaire included questions about the respondents' language history and language profiles. There were also open-ended questions about the respondents' motivations for learning languages, and their general experience of being both autistic and multilingual. We analyzed and summarized the responses to these open-ended questions to understand the experience of autistic multilingual adults.What were the results of the study?: Our sample had a diverse range of language profiles and experiences. Respondents thought that autism could be both an advantage and a disadvantage for language learning. They reported a range of motivations for language learning, including a predisposition for language learning. They considered relationships as both a motivation to learn languages and a benefit of multilingualism. Respondents thought that being multilingual had brought them many opportunities for leisure, travels, education, and employment. They considered that being multilingual had improved their self-confidence. They also thought that being multilingual had increased their awareness and understanding of autism, allowing them to connect with the wider autistic population.What do these findings add to what was already known?: Previous research with autistic multilinguals involved only one or two participants. The larger group of autistic multilinguals involved in this study offers valuable insight into the lived experiences of this overlooked population.What are potential weaknesses in the study?: The online questionnaire was not originally designed to collect in-depth data on lived experiences. This means that the questions included very few prompts: respondents were able to discuss the aspects of their experience that were the most important to them. The absence of specific topics in the results does not mean that they are not experienced, but simply that the participants did not spontaneously mention them. Future research should build upon our findings and focus on specific topics, such as learning environments or opportunities.How will these findings help autistic adults now or in the future?: These findings will help autistic adults by highlighting the diversity and richness of their language profiles, abilities, and experiences. This will prompt families, educators, and practitioners to better support and include autistic people in multilingual environments or those interested in languages.

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