{"title":"以公平的方式加强澳大利亚“我的健康记录”中消费者信息的隐私。","authors":"Zachary Hollo, Dominique E Martin","doi":"10.1177/18333583211019764","DOIUrl":null,"url":null,"abstract":"<p><p>Australia's national electronic health record (EHR), <i>My Health Record (MHR</i>), raises concerns about information privacy and the presumption of consent to participation. In contrast to the \"opt-out\" framework for participation, consumers must \"opt-in\" to obtain additional privacy features to protect their health information on <i>MHR</i>. We review ethical considerations relating to opt-in and opt-out frameworks in the context of EHRs, discussing potential reasons why consent for additional safeguards is not currently presumed. Exploring the implications of recent amendments to strengthen consumer privacy, we present recommendations to promote equity in health information security for all Australians using <i>MHR</i>.</p>","PeriodicalId":73210,"journal":{"name":"Health information management : journal of the Health Information Management Association of Australia","volume":"52 1","pages":"37-40"},"PeriodicalIF":0.0000,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/18333583211019764","citationCount":"7","resultStr":"{\"title\":\"An equitable approach to enhancing the privacy of consumer information on <i>My Health Record</i> in Australia.\",\"authors\":\"Zachary Hollo, Dominique E Martin\",\"doi\":\"10.1177/18333583211019764\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>Australia's national electronic health record (EHR), <i>My Health Record (MHR</i>), raises concerns about information privacy and the presumption of consent to participation. In contrast to the \\\"opt-out\\\" framework for participation, consumers must \\\"opt-in\\\" to obtain additional privacy features to protect their health information on <i>MHR</i>. We review ethical considerations relating to opt-in and opt-out frameworks in the context of EHRs, discussing potential reasons why consent for additional safeguards is not currently presumed. Exploring the implications of recent amendments to strengthen consumer privacy, we present recommendations to promote equity in health information security for all Australians using <i>MHR</i>.</p>\",\"PeriodicalId\":73210,\"journal\":{\"name\":\"Health information management : journal of the Health Information Management Association of Australia\",\"volume\":\"52 1\",\"pages\":\"37-40\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2023-01-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://sci-hub-pdf.com/10.1177/18333583211019764\",\"citationCount\":\"7\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Health information management : journal of the Health Information Management Association of Australia\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.1177/18333583211019764\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Health information management : journal of the Health Information Management Association of Australia","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1177/18333583211019764","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
An equitable approach to enhancing the privacy of consumer information on My Health Record in Australia.
Australia's national electronic health record (EHR), My Health Record (MHR), raises concerns about information privacy and the presumption of consent to participation. In contrast to the "opt-out" framework for participation, consumers must "opt-in" to obtain additional privacy features to protect their health information on MHR. We review ethical considerations relating to opt-in and opt-out frameworks in the context of EHRs, discussing potential reasons why consent for additional safeguards is not currently presumed. Exploring the implications of recent amendments to strengthen consumer privacy, we present recommendations to promote equity in health information security for all Australians using MHR.