以公平的方式加强澳大利亚“我的健康记录”中消费者信息的隐私。

Zachary Hollo, Dominique E Martin
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引用次数: 7

摘要

澳大利亚的国家电子健康记录(EHR),即我的健康记录(MHR),引起了人们对信息隐私和同意参与的推定的关注。与"选择退出"参与框架相反,消费者必须"选择加入"以获得额外的隐私功能,以保护他们在MHR上的健康信息。我们回顾了与电子病历背景下选择加入和选择退出框架相关的伦理考虑,讨论了目前不假定同意额外保障措施的潜在原因。探索最近修订的影响,以加强消费者的隐私,我们提出建议,以促进公平的健康信息安全为所有澳大利亚人使用MHR。
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An equitable approach to enhancing the privacy of consumer information on My Health Record in Australia.

Australia's national electronic health record (EHR), My Health Record (MHR), raises concerns about information privacy and the presumption of consent to participation. In contrast to the "opt-out" framework for participation, consumers must "opt-in" to obtain additional privacy features to protect their health information on MHR. We review ethical considerations relating to opt-in and opt-out frameworks in the context of EHRs, discussing potential reasons why consent for additional safeguards is not currently presumed. Exploring the implications of recent amendments to strengthen consumer privacy, we present recommendations to promote equity in health information security for all Australians using MHR.

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