不平凡的成人生活:智障成人视角下的生活状况。

IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL Journal of Intellectual Disabilities Pub Date : 2023-12-01 Epub Date: 2022-06-11 DOI:10.1177/17446295221107284
Õie Umb Carlsson, Päivi Adolfsson
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引用次数: 0

摘要

本研究的重点是与Uppsala生活质量模型(UQoL2)相关的智力残疾成人生活条件的主观体验。我们进行了11次半结构化访谈,以研究智障人士提出的问题。研究参与者有自己的家,要么是普通住宅,要么是集体之家。研究结果表明,日常生活中对支持的依赖侵犯了成人的社会地位感和生活控制感。工作人员和家庭有责任定义生活质量,这与基于智力残疾者偏好的生活的可能性相反。影响生活条件的因素是健康的社会决定因素之一,了解这些因素对一般公共卫生和社会为终身依赖他人支持和服务的人所作努力的发展具有影响。
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No ordinary adult life: Living conditions from the perspective of adults with intellectual disabilities.

This study focuses on the subjective experience of the living conditions of adults with intellectual disabilities as related to the Uppsala Quality of Life model (UQoL2). Eleven semi-structured interviews were conducted to study issues raised by people with intellectual disabilities. Study participants had their own home, either in an ordinary dwelling or group home. The findings show that the dependence on support in daily life infringes on the sense of adult social status and control of life. Staff and family had a mandate to define Quality of Life, which countered the possibilities of a life based on the preferences of those with intellectual disabilities. Knowledge about factors that affect living conditions, one of the social determinants of health, has implications for public health in general and the development of society's efforts for people who are in lifelong dependence on support and service from others.

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来源期刊
CiteScore
3.40
自引率
13.30%
发文量
82
期刊介绍: The principal aim of the journal is to provide a medium for the exchange of best practice, knowledge and research between academic and professional disciplines from education, social and health settings to bring about advancement of services for people with intellectual disabilities. The idea of a practice-led journal is both exciting and timely. This journal serves as a medium for all those involved with people with intellectual disabilities to submit and publish papers on issues relevant to promoting services for people with intellectual disabilities.
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