通过与家庭对话的方式制定出院干预措施,帮助他们为在家照顾患有慢性病的儿童做好准备:混合方法研究。

IF 1.3 4区 医学 Q3 NURSING Journal of Child Health Care Pub Date : 2024-09-01 Epub Date: 2023-02-28 DOI:10.1177/13674935231159827
Vanessa Medeiros da Nóbrega, Claudia Silveira Viera, Elisiane Lorenzini, Eliane Tatsch Neves, Altamira Pereira da Silva Reichert, Elenice Maria Cecchetti Vaz, Neusa Collet
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引用次数: 0

摘要

本研究采用聚合平行混合方法设计,将定性数据收集嵌入到准实验研究中,以考察三种慢性病患儿家庭出院准备模式在不确定性水平和家庭疾病管理方面的潜力。这些儿童的照顾者被分为三组:两组实验组和一组对照组。采用两个量表:一个量表测量家庭管理,另一个量表评估与疾病相关的不确定性。此外,还进行了深度访谈。在数据分析中使用了 Wilcoxon 检验和综合反应指数来比较各组之间的表现。对定性数据采用了归纳主题分析法。对数据进行整合,比较各组在出院准备前后的表现。25 名家属护理人员完成了这项研究。数据整合结果显示,干预组中,家属通过与专业人员对话的方式制定出院准备计划,与结构化指导组和常规护理组相比,干预组对护理管理的认知度更高。家庭参与出院规划的情况表明,对疾病的不确定性减少了,儿童在家中的护理管理也得到了改善。
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Hospital discharge intervention developed in a dialogical way with families to prepare them to care for children with chronic diseases at home: Mixed methods study.

A convergent parallel mixed methods design with qualitative data collection embedded in a quasi-experimental study was developed to examine the potential of three modalities of preparation for hospital discharge of the families of children with chronic diseases in terms of uncertainty levels and management of the disease at home. Caregivers of these children were divided into three groups: two experimental groups and one control group. Two scales were applied: one measured family management, and the other evaluated uncertainties in relation to the disease. In addition, an in-depth interview was conducted. Wilcoxon's test and the integrated response index were used in data analysis to compare performance between the groups. Inductive thematic analysis was employed for the qualitative data. The data were integrated, comparing the groups before and after preparation for hospital discharge. Twenty-five family caregivers completed this study. Data integration showed that the intervention group, in which the families developed planning to prepare for discharge in a dialogical way with professionals, presented better perceptions regarding care management when compared to structured guide and usual care groups. Participation of families in planning for hospital discharge showed a reduction in uncertainties regarding the disease and better care management of children at home.

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来源期刊
Journal of Child Health Care
Journal of Child Health Care NURSING-PEDIATRICS
CiteScore
4.10
自引率
15.80%
发文量
60
审稿时长
>12 weeks
期刊介绍: Journal of Child Health Care is a broad ranging, international, professionally-oriented, interdisciplinary and peer reviewed journal. It focuses on issues related to the health and health care of neonates, children, young people and their families, including areas such as illness, disability, complex needs, well-being, quality of life and mental health care in a diverse range of settings. The Journal of Child Health Care publishes original theoretical, empirical and review papers which have application to a wide variety of disciplines.
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