召集一个跨学科团队,为癌症青年兄弟姐妹的研究和支持创建和推进共同愿景。

IF 1 4区 医学 Q3 NURSING Journal of Pediatric Hematology-Oncology Nursing Pub Date : 2023-01-01 Epub Date: 2022-10-17 DOI:10.1177/27527530221121727
Christina M Amaro, Melissa A Alderfer, Cynthia A Gerhardt, Sarah E Wawrzynski, Melanie Goldish, Kristin A Long
{"title":"召集一个跨学科团队,为癌症青年兄弟姐妹的研究和支持创建和推进共同愿景。","authors":"Christina M Amaro,&nbsp;Melissa A Alderfer,&nbsp;Cynthia A Gerhardt,&nbsp;Sarah E Wawrzynski,&nbsp;Melanie Goldish,&nbsp;Kristin A Long","doi":"10.1177/27527530221121727","DOIUrl":null,"url":null,"abstract":"<p><p><b>Background:</b> Siblings of youth with cancer are at risk for psychosocial difficulties and report unmet needs. Supporting siblings is a psychosocial standard of care; however, many barriers prevent this standard from being fully achieved. Transdisciplinary team science has potential to generate novel, real-world solutions to complex research problems and can be beneficial to addressing sibling needs within pediatric hematology/oncology nursing. This process paper aims to present a guiding framework for transdisciplinary team science using the experiences of the Sibling Partnership for Advocacy, Research, and Care in Childhood Cancer (SPARCCC) as an exemplar. <b>Methods:</b> SPARCCC employed an established model of transdisciplinary team-based research, which consisted of four phases: development, consultation, implementation, and translation. This transdisciplinary team was comprised of international experts from a variety of disciplines, as well as siblings and families impacted by cancer. <b>Results:</b> SPARCCC held two summits, and team members developed ongoing collaborative efforts to advance advocacy, research, and support for siblings of youth with cancer. The team implemented the four phases of the transdisciplinary team-based framework and used an iterative process to build a shared perspective of the needs of siblings and take action. For instance, we completed a grant application, several manuscripts, and conference presentations to disseminate our findings and begin to advance a focused research agenda for sibling supportive care. <b>Discussion:</b> Transdisciplinary team science holds promise for tackling complex issues within pediatric hematology/oncology nursing research, particularly areas that are not well aligned with more traditional models and can be used to generate novel solutions.</p>","PeriodicalId":29692,"journal":{"name":"Journal of Pediatric Hematology-Oncology Nursing","volume":null,"pages":null},"PeriodicalIF":1.0000,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9900248/pdf/10.1177_27527530221121727.pdf","citationCount":"0","resultStr":"{\"title\":\"Bringing Together a Transdisciplinary Team to Create and Advance a Shared Vision for Research and Support for Siblings of Youth With Cancer.\",\"authors\":\"Christina M Amaro,&nbsp;Melissa A Alderfer,&nbsp;Cynthia A Gerhardt,&nbsp;Sarah E Wawrzynski,&nbsp;Melanie Goldish,&nbsp;Kristin A Long\",\"doi\":\"10.1177/27527530221121727\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p><b>Background:</b> Siblings of youth with cancer are at risk for psychosocial difficulties and report unmet needs. Supporting siblings is a psychosocial standard of care; however, many barriers prevent this standard from being fully achieved. Transdisciplinary team science has potential to generate novel, real-world solutions to complex research problems and can be beneficial to addressing sibling needs within pediatric hematology/oncology nursing. This process paper aims to present a guiding framework for transdisciplinary team science using the experiences of the Sibling Partnership for Advocacy, Research, and Care in Childhood Cancer (SPARCCC) as an exemplar. <b>Methods:</b> SPARCCC employed an established model of transdisciplinary team-based research, which consisted of four phases: development, consultation, implementation, and translation. This transdisciplinary team was comprised of international experts from a variety of disciplines, as well as siblings and families impacted by cancer. <b>Results:</b> SPARCCC held two summits, and team members developed ongoing collaborative efforts to advance advocacy, research, and support for siblings of youth with cancer. The team implemented the four phases of the transdisciplinary team-based framework and used an iterative process to build a shared perspective of the needs of siblings and take action. For instance, we completed a grant application, several manuscripts, and conference presentations to disseminate our findings and begin to advance a focused research agenda for sibling supportive care. <b>Discussion:</b> Transdisciplinary team science holds promise for tackling complex issues within pediatric hematology/oncology nursing research, particularly areas that are not well aligned with more traditional models and can be used to generate novel solutions.</p>\",\"PeriodicalId\":29692,\"journal\":{\"name\":\"Journal of Pediatric Hematology-Oncology Nursing\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":1.0000,\"publicationDate\":\"2023-01-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9900248/pdf/10.1177_27527530221121727.pdf\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of Pediatric Hematology-Oncology Nursing\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.1177/27527530221121727\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2022/10/17 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"Q3\",\"JCRName\":\"NURSING\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Pediatric Hematology-Oncology Nursing","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1177/27527530221121727","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2022/10/17 0:00:00","PubModel":"Epub","JCR":"Q3","JCRName":"NURSING","Score":null,"Total":0}
引用次数: 0

摘要

背景:癌症青年的兄弟姐妹面临心理社会困难的风险,并报告未满足的需求。支持兄弟姐妹是一种社会心理护理标准;然而,许多障碍阻碍了这一标准的全面实现。跨学科团队科学有可能为复杂的研究问题提供新的、现实世界的解决方案,并有助于解决儿科血液学/肿瘤学护理中的兄弟姐妹需求。本过程文件旨在以儿童癌症倡导、研究和护理兄弟姐妹伙伴关系(SPARCCC)的经验为例,提出跨学科团队科学的指导框架。方法:SPARCCC采用了一种已建立的跨学科团队研究模式,该模式包括四个阶段:开发、咨询、实施和翻译。这个跨学科团队由来自各个学科的国际专家以及受癌症影响的兄弟姐妹和家庭组成。结果:SPARCCC举行了两次峰会,团队成员开展了持续的合作,以促进对癌症青年兄弟姐妹的宣传、研究和支持。该团队实施了基于跨学科团队的框架的四个阶段,并使用迭代过程来建立对兄弟姐妹需求的共同观点并采取行动。例如,我们完成了一份拨款申请、几份手稿和会议演示,以传播我们的发现,并开始推进兄弟姐妹支持性护理的重点研究议程。讨论:跨学科团队科学有望解决儿科血液学/肿瘤学护理研究中的复杂问题,特别是与更传统的模型不太一致的领域,可以用来产生新的解决方案。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
查看原文
分享 分享
微信好友 朋友圈 QQ好友 复制链接
本刊更多论文
Bringing Together a Transdisciplinary Team to Create and Advance a Shared Vision for Research and Support for Siblings of Youth With Cancer.

Background: Siblings of youth with cancer are at risk for psychosocial difficulties and report unmet needs. Supporting siblings is a psychosocial standard of care; however, many barriers prevent this standard from being fully achieved. Transdisciplinary team science has potential to generate novel, real-world solutions to complex research problems and can be beneficial to addressing sibling needs within pediatric hematology/oncology nursing. This process paper aims to present a guiding framework for transdisciplinary team science using the experiences of the Sibling Partnership for Advocacy, Research, and Care in Childhood Cancer (SPARCCC) as an exemplar. Methods: SPARCCC employed an established model of transdisciplinary team-based research, which consisted of four phases: development, consultation, implementation, and translation. This transdisciplinary team was comprised of international experts from a variety of disciplines, as well as siblings and families impacted by cancer. Results: SPARCCC held two summits, and team members developed ongoing collaborative efforts to advance advocacy, research, and support for siblings of youth with cancer. The team implemented the four phases of the transdisciplinary team-based framework and used an iterative process to build a shared perspective of the needs of siblings and take action. For instance, we completed a grant application, several manuscripts, and conference presentations to disseminate our findings and begin to advance a focused research agenda for sibling supportive care. Discussion: Transdisciplinary team science holds promise for tackling complex issues within pediatric hematology/oncology nursing research, particularly areas that are not well aligned with more traditional models and can be used to generate novel solutions.

求助全文
通过发布文献求助,成功后即可免费获取论文全文。 去求助
来源期刊
CiteScore
3.30
自引率
0.00%
发文量
0
期刊最新文献
No Conflicting Loyalties in Parents When Their Healthy Child Donates Stem Cells to a Severely Ill Sibling: An Interview Study. Digital Stories Created by Children With Advanced Cancer. Examining Factors in the Decision to Sperm Bank by Adolescent and Young Adult Males Diagnosed With Cancer: A Review of the Literature. A Quality Approach to Blinatumomab Delivery in Pediatric Oncology: A Children's Oncology Group Study. The Use of Complementary and Integrative Medicine in Combination With Pharmacological Antiemetics to Address Chemotherapy-Induced Nausea and Vomiting in Pediatric Oncology: A Scoping Review.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
现在去查看 取消
×
提示
确定
0
微信
客服QQ
Book学术公众号 扫码关注我们
反馈
×
意见反馈
请填写您的意见或建议
请填写您的手机或邮箱
已复制链接
已复制链接
快去分享给好友吧!
我知道了
×
扫码分享
扫码分享
Book学术官方微信
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术
文献互助 智能选刊 最新文献 互助须知 联系我们:info@booksci.cn
Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。
Copyright © 2023 Book学术 All rights reserved.
ghs 京公网安备 11010802042870号 京ICP备2023020795号-1